Abstract
Autism research funding across the world has disproportionately been invested in biological and genetic research, despite evidence that these topics are not prioritized by community members. We sought to determine whether a similar pattern was evident in Australia’s autism research funding landscape between 2008 and 2017, by analysing the nation’s portfolio of autism research investments. We also examined whether there was any change in this pattern of funding since the establishment in 2013 of the Cooperative Research Centre for Living with Autism (Autism CRC). Overall, Australian autism research funding during 2008–2017 followed a similar pattern to other countries, but shifted in the past 5 years. Further progress is required to bring research funding into line with community priorities.
Similar content being viewed by others
References
Australian Government. (2019). Cooperative Research Centres (CRC) Program. Retrieved from https://www.business.gov.au/assistance/cooperative-research-centres-programme.
Autistica. (2016). Your questions: Shaping future autism research. Retrieved from https://www.autistica.org.uk/downloads/files/Autism-Top-10-Your-Priorities-for-Autism-Research.pdf.
Cooperative Research Centre for Living with Autism. (2014). Annual report 2013–2014. Retrieved from https://www.autismcrc.com.au/sites/default/files/inline-files/2013-14%20Autism%20CRC%20Annual%20Report.pdf.
Cooperative Research Centre for Living with Autism. (2015). Annual report 2014–2015. Retrieved from https://www.autismcrc.com.au/sites/default/files/inline-files/2014-15%20Autism%20CRC%20Annual%20Report_0.pdf.
Cooperative Research Centre for Living with Autism. (2016). Annual report 2015–2016. Retrieved from https://www.autismcrc.com.au/sites/default/files/inline-files/2015-16%20Autism%20CRC%20Annual%20Report.pdf.
Cooperative Research Centre for Living with Autism. (2017). 2016–2017 Annual report. Retrieved from https://www.autismcrc.com.au/sites/default/files/inline-files/AutismCRC_AnnualReport2016-17%20FINAL%20for%20web.pdf.
Cooperative Research Centre for Living with Autism. (2018). 2017-2018 annual report. Retrieved from https://www.autismcrc.com.au/sites/default/files/inline-files/AutismCRC_AnnualReport2017-18_DIGITAL.pdf.
Croen, L. A., Zerbo, O., Qian, Y., Massolo, M. L., Rich, S., Sidney, S., et al. (2015). The health status of adults on the autism spectrum. Autism, 19(7), 814–823. https://doi.org/10.1177/1362361315577517.
Daniels, S. A., & Warner, G. (2018). An international autism portfolio analysis by United States, United Kingdom, and Canada. Presentation at the International Society for Autism Research. (2018). Annual Meeting. Netherlands: Rotterdam.
Fletcher-Watson, S., & Happé, F. (2019). Autism: A new introduction to psychological theory and current debate. London: Routledge.
Frazier, T. W., Dawson, G., Murray, D., Shih, A., Sachs, J. S., & Geiger, A. (2018). Brief report: A survey of autism research priorities across a diverse community of stakeholders. Journal of Autism and Developmental Disorders, 48(11), 3965–3971. https://doi.org/10.1007/s10803-018-3642-6.
Gatfield, O., Mangan, C., Harr, T., Kinniburgh, A., & Rodger, S. (2016). 2016 Autism research priorities survey report. Retrieved from https://www.autismcrc.com.au/sites/default/files/inline-files/Research%20priorities%20survey%20-%20Final%20report.pdf.
Howlin, P., & Magiati, I. (2017). Autism spectrum disorder: Outcomes in adulthood. Current Opinions in Psychiatry, 30(2), 69–76. https://doi.org/10.1097/YCO.0000000000000308.
Interagency Autism Coordinating Committee (IACC). (2009). 2009 Strategic plan for autism spectrum disorder research. Retrived from https://iacc.hhs.gov/publications/strategic-plan/2009/strategic_plan_2009.pdf.
Krahn, T. M., & Fenton, A. (2012). Funding priorities: Autism and the need for a more balanced research agenda in Canada. Public Health Ethics, 5(3), 296–310. https://doi.org/10.1093/phe/phs027.
Lloyd, K., & White, J. (2011). Democratizing clinical research. Nature, 474, 77–278. https://doi.org/10.1038/474277a.
Office of Autism Research Coordination, National Institute of Mental Health, on behalf of the Interagency Autism Coordinating Committee. (2011). 2009 Autism spectrum disorder research: Portfolio analysis report. Retrieved from https://iacc.hhs.gov/publications/portfolio-analysis/2009/.
Office of Autism Research Coordination, National Institute of Mental Health, on behalf of the Interagency Autism Coordinating Committee. (2012). 2010 autism spectrum disorder research: Portfolio analysis report. Retrieved from https://iacc.hhs.gov/publications/portfolio-analysis/2010/.
Office of Autism Research Coordination, National Institute of Mental Health, on behalf of the Interagency Autism Coordinating Committee. (2016). 2011-2012 autism spectrum disorder research: Portfolio analysis report. Retrieved from https://iacc.hhs.gov/publications/portfolio-analysis/2012/.
Office of Autism Research Coordination, National Institute of Mental Health, on behalf of the Interagency Autism Coordinating Committee. (2017a). 2013 IACC autism spectrum disorder research: Portfolio analysis report. Retrieved from https://iacc.hhs.gov/publications/portfolio-analysis/2013/.
Office of Autism Research Coordination, National Institute of Mental Health, on behalf of the Interagency Autism Coordinating Committee. (2017b). 2014-2015 IACC autism spectrum disorder research: Portfolio analysis report. Retrieved from https://iacc.hhs.gov/publications/portfolio-analysis/2015/.
Office of Autism Research Coordination, National Institute of Mental Health, on behalf of the Interagency Autism Coordinating Committee. (2019). 2016 IACC autism spectrum disorder research: Portfolio analysis report. Retrieved from https://iacc.hhs.gov/publications/portfolio-analysis/2016/.
Office of Autism Research Coordination, National Institute of Mental Health, on behalf of the Interagency Autism Coordinating Committee. (n.d.). Autism spectrum disorder research: 2008 portfolio analysis report. Retrieved from https://iacc.hhs.gov/publications/portfolio-analysis/2008/.
Partridge, N., & Scadding, J. (2004). The James Lind Alliance: Patients and clinicians should jointly identify their priorities for clinical trials. Lancet, 364, 1923–1924. https://doi.org/10.1016/S0140-6736(04)17494-1.
Pellicano, E., Dinsmore, A., & Charman, T. (2013). A future made together: Shaping autism research in the UK. Retrieved from http://discovery.ucl.ac.uk/10017703/1/A_Future_Made_Together_1.2_LR.pdf.
Pellicano, E., Dinsmore, A., & Charman, T. (2014). What should autism research focus upon? Community views and priorities from the United Kingdom. Autism, 18(7), 756–770. https://doi.org/10.1177/1362361314529627.
Singh, J., Illes, J., Lazzeroni, L., & Hallmayer, J. (2009). Trends in US autism research funding. Journal of Autism and Developmental Disorders, 39(5), 788–795. https://doi.org/10.1007/s10803-008-0685-0.
Turcotte, P., Mathew, M., Shea, L. L., Brusilovskiy, E., & Nonnemacher, S. L. (2016). Service needs across the lifespan for individuals with autism. Journal of Autism and Developmental Disorders, 46(7), 2480–2489. https://doi.org/10.1007/s10803-016-2787-4.
Acknowledgements
The authors acknowledge the financial support of the Cooperative Research Centre for Living with Autism (Autism CRC), established and supported under the Australian Government’s Cooperative Research Centres Program. Data were sourced from Dimensions, an inter-linked research information system provided by Digital Science (https://www.dimensions.ai).
Funding
Jacquiline den Houting holds a Postdoctoral Research Associate position funded by the Autism CRC. This research project received financial support from the Autism CRC (Project Number 0.011RS). The Autism CRC had no involvement in the design, analysis, interpretation, or write-up of this project.
Author information
Authors and Affiliations
Contributions
Both authors contributed to the study conception and design. Funding search, initial coding, and data analyses were conducted by Jacquiline den Houting. Secondary coding was conducted by Elizabeth Pellicano. The first draft of the manuscript was written by Jacquiline den Houting, and Elizabeth Pellicano commented on previous versions of the manuscript. Both authors read and approved the final manuscript.
Corresponding author
Additional information
Publisher's Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Electronic supplementary material
Below is the link to the electronic supplementary material.
Rights and permissions
About this article
Cite this article
den Houting, J., Pellicano, E. A Portfolio Analysis of Autism Research Funding in Australia, 2008–2017. J Autism Dev Disord 49, 4400–4408 (2019). https://doi.org/10.1007/s10803-019-04155-1
Published:
Issue Date:
DOI: https://doi.org/10.1007/s10803-019-04155-1