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Tools for Improving Clinical Preventive Services Receipt Among Women with Disabilities of Childbearing Ages and Beyond

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Abstract

Efforts to improve clinical preventive services (CPS) receipt among women with disabilities are poorly understood and not widely disseminated. The reported results represent a 2-year, Centers for Disease Control and Prevention and Association of Maternal and Child Health Programs partnership to develop a central resource for existing tools that are of potential use to maternal and child health practitioners who work with women with disabilities. Steps included contacting experts in the fields of disability and women’s health, searching the Internet to locate examples of existing tools that may facilitate CPS receipt, convening key stakeholders from state and community-based programs to determine their potential use of the tools, and developing an online Toolbox. Nine examples of existing tools were located. The tools focused on facilitating use of the CPS guidelines, monitoring CPS receipt among women with disabilities, improving the accessibility of communities and local transportation, and training clinicians and women with disabilities. Stakeholders affirmed the relevance of these tools to their work and encouraged developing a Toolbox. The Toolbox, launched in May 2013, provides information and links to existing tools and accepts feedback and proposals for additional tools. This Toolbox offers central access to existing tools. Maternal and child health stakeholders and other service providers can better locate, adopt and implement existing tools to facilitate CPS receipt among adolescent girls with disabilities who are transitioning into adult care as well as women with disabilities of childbearing ages and beyond.

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Acknowledgments

This project was funded by the Disability and Health Branch as part of the CDC, Office for State, Tribal, Local and Territorial Support (OSTLTS) Cooperative Agreement HM08-805. We thank all of the meeting participants for their expertise in reviewing examples of the tools for the Toolbox and appreciate the opening presenters Michael Fraser, Coleen Boyle, Rosaly Correa-De-Arraujo, Nancy Lee, and Marilyn Hartzell, as well as the tool presenters Michelle Sloan (co-author), Michelle Camicia, Donna Smith, Daniel Bailey, Marsha Saxton, Susan Parish, and Adriane Griffin. We thank Jacqui Butler and Lauren Ramos who oversaw the CDC/AMCHP agreement, Alma Reyes who arranged the stakeholder meeting, Sheri Jordan who assisted with the meeting agenda layout, Vincent Campbell who researched the Census estimates, Arlene Vincent-Mark who provided comments on the appendix layout, Michelle Reyes who oversaw the meeting planning and reviewed the manuscript along with Lacy Farhenbach, Dianna Carroll, and Michael Fox.

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Authors and Affiliations

  1. Disability and Health Branch, Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, U.S. Department of Health and Human Services, 1600 Clifton Rd, E-88, Atlanta, GA, 30333, USA

    Lisa B. Sinclair, Michelle L. Sloan, Alissa C. Stevens & Gloria L. Krahn

  2. Children and Youth with Special Health Care Needs, Association of Maternal and Child Health Programs, 2030 M Street NW, Washington, 20036, DC, USA

    Kate E. Taft

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  1. Lisa B. Sinclair
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  2. Kate E. Taft
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  3. Michelle L. Sloan
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  4. Alissa C. Stevens
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  5. Gloria L. Krahn
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Corresponding author

Correspondence to Lisa B. Sinclair.

Appendix

Appendix

See Table 2.

Table 2 Clinical preventive services receipt among women, by disability status
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Sinclair, L.B., Taft, K.E., Sloan, M.L. et al. Tools for Improving Clinical Preventive Services Receipt Among Women with Disabilities of Childbearing Ages and Beyond. Matern Child Health J 19, 1189–1201 (2015). https://doi.org/10.1007/s10995-014-1627-4

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