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Dementia and Intellectual Disability: Prevalence, Assessment and Post-Diagnostic Support

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Handbook of Intellectual Disabilities

Part of the book series: Autism and Child Psychopathology Series ((ACPS))

Abstract

People with an intellectual disability are at greater risk of developing dementia than the general population. Due to a genetic risk factor, much of the research on dementia in people with an intellectual disability to date has focused on people with Down syndrome. This chapter discusses the genetic risk factors specific to those with Down syndrome, the prevalence of dementia in people with an intellectual disability with and without Down syndrome. The presentation of dementia is also discussed along with some of the challenges in dementia assessment with this population. Best practice guidelines, from disclosure of diagnosis through to end of life care are outlined, with an example of best practice. Finally, all aspects of the chapter are brought together with a case study to illustrate the issues discussed.

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Authors and Affiliations

  1. Trinity Centre for Ageing and Intellectual Disability, Trinity College Dublin, The University of Dublin, Dublin, Ireland

    Eimear McGlinchey & Mary McCarron

  2. Daughters of Charity Disability Support Service, Dublin, Ireland

    Evelyn Reilly, Pamela Dunne & Niamh Mulryan

  3. School of Social Work, Temple University, Philadelphia, PA, USA

    Philip McCallion

  4. IDS TILDA and School of Nursing and Midwifery, Trinity College Dublin, The University of Dublin, Dublin, Ireland

    Rachael Carroll

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  1. Eimear McGlinchey
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  2. Evelyn Reilly
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  4. Pamela Dunne
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  7. Mary McCarron
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Correspondence to Eimear McGlinchey .

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  1. Department of Psychology, Louisiana State University, Baton Rouge, LA, USA

    Johnny L. Matson

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McGlinchey, E. et al. (2019). Dementia and Intellectual Disability: Prevalence, Assessment and Post-Diagnostic Support. In: Matson, J.L. (eds) Handbook of Intellectual Disabilities. Autism and Child Psychopathology Series. Springer, Cham. https://doi.org/10.1007/978-3-030-20843-1_51

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