Abstract
Advance care planning can take a number of forms including discussions with family members that are not formally documented, similar discussions with one’s physician, and directives for level of care during hospitalization such as do not resuscitate (DNR) orders.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Alexander, G. C., & Sehgal, A. R. (1998). Barriers to cadaveric renal transplantation among blacks, women, and the poor. JAMA, 280(13), 1148–1152.
Al-Bar, M. A., & Chamsi-Pasha, H. (2015). Contemporary bioethics: Islamic Perspective. New York: Springer.
Attaran, A. (2015). Unanimity on death with dignity—Legalizing physician-assisted dying in Canada. New England Journal of Medicine, 372(22), 2080–2082.
Baker, D. W., Einstadter, D., Husak, S., & Cebul, R. D. (2003). Changes in the use of do-not-resuscitate orders after implementation of the Patient Self-Determination Act. Journal of General Internal Medicine, 18(5), 343–349.
BBC (2017) Terminally ill Noel Conway Loses Supreme Court Appeal. https://www.bbc.com/news/uk-england-shropshire-46359845.
Beširević, V. (2010). End‐of‐life care in the 21st century: Advance directives in universal rights discourse. Bioethics, 24(3), 105–112.
Blackhall, L. J., Murphy, S. T., Frank, G., Michel, V., & Azen, S. (1995). Ethnicity and attitudes toward patient autonomy. JAMA, 274(10), 820–825.
Blanke, C., LeBlanc, M., Hershman, D., Ellis, L., & Meyskens, F. (2017). Characterizing 18 years of the death with dignity act in Oregon. JAMA Oncology, 3(10), 1403–1406.
Braithwaite, R. L., Taylor, S. E., & Treadwell, H. M. (2009). Health issues in the Black community. New York: John Wiley & Sons.
Cai, Y. (2015). On family informed consent: On the legislation of organ donation in China. In R. Fan (Ed.), Family-oriented informed consent: East Asian and American perspectives (pp. 187–200). New York: Springer.
Chan, H. M., Doris, M. T., Wong, K. H., Lai, J. C. L., & Chui, C. K. (2015). End-of-life decision making in Hong Kong: the appeal of the shared decision making model. In Family-Oriented Informed Consent (pp. 149–167). Cham: Springer.
Cheng, S. Y., Suh, S. Y., Morita, T., Oyama, Y., Chiu, T. Y., Koh, S. J., … Tsuneto, S. (2015). A cross-cultural study on behaviors when death is approaching in East Asian countries: What are the physician-perceived common beliefs and practices? Medicine, 94(39), 1–5.
Cohen-Almagor, R. (2017). Euthanizing people who are ‘Tired of Life’ in Belgium. Euthanasia and Assisted Suicide: Lessons from Belgium (pp. 188–201). Cambridge: Cambridge University Press.
Diem, S. J., Lantos, J. D., & Tulsky, J. A. (1996). Cardiopulmonary resuscitation on television—Miracles and misinformation. New England Journal of Medicine, 334(24), 1578–1582.
Emanuel, L. L., Barry, M. J., Stoeckle, J. D., Ettelson, L. M., & Emanuel, E. J. (1991). Advance directives for medical care—A case for greater use. New England Journal of Medicine, 324(13), 889–895.
Ernecoff, N. C., Curlin, F. A., Buddadhumaruk, P., & White, D. B. (2015). Health care professionals’ responses to religious or spiritual statements by surrogate decision makers during goals-of-care discussions. JAMA Internal Medicine, 175(10), 1662–1669.
Epstein, A. M., Ayanian, J. Z., Keogh, J. H., Noonan, S. J., Armistead, N., Cleary, P. D., … Conti, R. M. (2000). Racial disparities in access to renal transplantation—clinically appropriate or due to underuse or overuse?. The New England Journal of Medicine, 343(21), 1537.
Frankford, D. M. (2015). The remarkable staying power of “death panels”. Journal of Health Politics, Policy and Law, 40(5), 1087–1101.
Ganzini, L. (2017). Legalized physician assisted death in Oregon—Eighteen years’ experience. In Assistierter Suizid: Der Stand der Wissenschaft (pp. 7–20). Berlin, Heidelberg: Springer.
Garrido, M. M., Harrington, S. T., & Prigerson, H. G. (2014). End‐of‐life treatment preferences: A key to reducing ethnic/racial disparities in advance care planning?. Cancer, 120(24), 3981–3986.
Gramling, R., Fiscella, K., Xing, G., Hoerger, M., Duberstein, P., Plumb, S., … Epstein, R. M. (2016). Determinants of patient-oncologist prognostic discordance in advanced cancer. JAMA Oncology, 2(11), 1421–1426.
Huang, C. H., Hu, W. Y., Chiu, T. Y., & Chen, C. Y. (2008). The practicalities of terminally ill patients signing their own DNR orders—a study in Taiwan. Journal of Medical Ethics, 34(5), 336–340.
Johnson, K. S., Kuchibhatla, M., & Tulsky, J. A. (2008). What explains racial differences in the use of advance directives and attitudes toward hospice care?. Journal of the American Geriatrics Society, 56(10), 1953–1958.
Kreling, B., Selsky, C., Perret-Gentil, M., Huerta, E. E., Mandelblatt, J. S., & Latin American Cancer Research Coalition. (2010). ‘The worst thing about hospice is that they talk about death’: Contrasting hospice decisions and experience among immigrant Central and South American Latinos with US-born White, non-Latino cancer caregivers. Palliative Medicine, 24(4), 427–434.
Larijani, B., Zahedi, F., & Taheri, E. (2004). Ethical and legal aspects of organ transplantation in Iran. In Transplantation proceedings (Vol. 36, No. 5, pp. 1241–1244). New York: Elsevier.
Lee, I. (2015). Filial duty as the moral foundation of caring for the elderly: its possibility and limitations. In R. Fan (Ed.), Family-oriented informed consent: East Asian and American perspectives (pp. 137–147). New York: Springer.
Lerner, B. H., & Caplan, A. L. (2015). Euthanasia in Belgium and the Netherlands: On a slippery slope? JAMA Internal Medicine, 175(10), 1640–1641.
Li, M., Watt, S., Escaf, M., Gardam, M., Heesters, A., O’Leary, G., & Rodin, G. (2017). Medical assistance in dying—Implementing a hospital-based program in Canada. New England Journal of Medicine, 376(21), 2082–2088.
Miller, F. G., & Appelbaum, P. S. (2018). Physician-assisted death for psychiatric patients—Misguided public policy. New England Journal of Medicine, 378(10), 883–885.
Morrell, E. D., Brown, B. P., Qi, R., Drabiak, K., & Helft, P. R. (2008). The do-not-resuscitate order: associations with advance directives, physician specialty and documentation of discussion 15 years after the Patient Self-Determination Act. Journal of Medical Ethics, 34(9), 642–647.
Ngo‐Metzger, Q., Phillips, R. S., & McCarthy, E. P. (2008). Ethnic disparities in hospice use among Asian‐American and Pacific Islander patients dying with cancer. Journal of the American Geriatrics Society, 56(1), 139–144.
Nicholas, L. H., Langa, K. M., Iwashyna, T. J., & Weir, D. R. (2011). Regional variation in the association between advance directives and end-of-life Medicare expenditures. Jonal of the American Medical Association, 306(13), 1447–1453.
Ofri, D. (2012). In Israel, a new approach to organ donation. The New York Times. February 16.
Peinado-Gorlat, P., Castro-Martínez, F. J., Arriba-Marcos, B., Melguizo-Jiménez, M., & Barrio-Cantalejo, I. (2015). Roma women’s perspectives on end-of-life decisions. Journal of Bioethical Inquiry, 12(4), 687–698.
Perkins, H. S. (2007). Controlling death: the false promise of advance directives. Annals of Internal Medicine, 147(1), 51–57.
Rady, M. Y., Verheijde, J. L., & Ali, M. S. (2009). Islam and end-of-life practices in organ donation for transplantation: New questions and serious sociocultural consequences. HEC Forum, 21(2), 175.
Raus, K., Chambaere, K., & Sterckx, S. (2016). Controversies surrounding continuous deep sedation at the end of life: The parliamentary and societal debates in France. BMC Medical Ethics, 17(1), 36.
Rhodes, R. L., Batchelor, K., Lee, S. C., & Halm, E. A. (2015). Barriers to end-of-life care for African Americans from the providers’ perspective: Opportunity for intervention development. American Journal of Hospice and Palliative Medicine, 32(2), 137–143.
Rhodes, R. L., Mitchell, S. L., Miller, S. C., Connor, S. R., Teno, J. M. (2008). Bereaved family members’ evaluation of hospice care: What factors influence overall satisfaction with services? Journal of Pain and Symptom Management, 35(4), 365–371.
Ross W. (2015). Dying Dutch: Euthanasia spreads across Europe. Newsweek. February 12.
Schneider, A. P., Nelson, D. J., & Brown, D. D. (1993). In-hospital cardiopulmonary resuscitation: A 30-year review. The Journal of the American Board of Family Practice, 6(2), 91–101.
Searight, H. R. (2019). Conducting psychotherapy with an interpreter. Oxford Handbook of Psychotherapy Ethics, in press.
Searight, H. R., & Gafford, J. (2005). “It’s like playing with your destiny”: Bosnian immigrants’ views of advance directives and end-of-life decision-making. Journal of Immigrant Health, 7(3), 195–203.
Searight, H. R., & Meredith, T. (2019). Physician deception and telling the truth about medical “Bad News”: History, ethical perspectives, and cultural issues. In The Palgrave Handbook of Deceptive Communication (pp. 647–672). New York: Palgrave Macmillan.
Silveira, M. J., Kim, S. Y., & Langa, K. M. (2010). Advance directives and outcomes of surrogate decision making before death. New England Journal of Medicine, 362(13), 1211–1218.
Sokol, R. (2007, March 21). Essay: The right to die. New York Times.
Sprung, C. L., Maia, P., Bulow, H. H., Ricou, B., Armaganidis, A., Baras, M., … & Nakos, G. (2007). The importance of religious affiliation and culture on end-of-life decisions in European intensive care units. Intensive Care Medicine, 33(10), 1732–1739.
Starzl, T. E., Groth, C. G., Brettschneider, L., Penn, I., Fulginiti, V. A., Moon, J. B., … Porter, K. A. (1968). Orthotopic homotransplantation of the human liver. Annals of Surgery, 168(3), 392.
Sturman, R. L. (2003). Six lives in Jerusalem: End-of-life decisions in Jerusalem: Cultural, medical, ethical and legal considerations. New York: Springer.
The Guardian (2011, September, 28). Right to die case: How Britain’s most secretive court operates.
Truog, R. D., & Robinson, W. M. (2003). Role of brain death and the dead-donor rule in the ethics of organ transplantation. Critical Care Medicine, 31(9), 2391–2396.
Vandenberghe, J. (2018). Physician-assisted suicide and psychiatric illness. New England Journal of Medicine, 378(10), 885–887.
Verna, L., Porzio, G., Galli, B., Sacco, I., Brogi, L., Spinelli, G., & Giusti, R. (2016). Immigrants accessing end-of-life care in Italy: The tuscany tumor association experience. Journal of Pain and Symptom Management, 51(5), e7.
Yadav, K. N., Gabler, N. B., Cooney, E., Kent, S., Kim, J., Herbst, N., … Courtright, K. R. (2017). Approximately one in three US adults completes any type of advance directive for end-of-life care. Health Affairs, 36(7), 1244–1251.
Yang, Y. (2015). A family oriented Confucian approach to advance directives in end-of-life decision-making for incompetent elderly patients. In R. Fan (Ed.), Family-oriented informed consent: East Asian and American perspectives (pp. 257–270). New York: Springer.
Author information
Authors and Affiliations
Corresponding author
Rights and permissions
Copyright information
© 2019 The Author(s), under exclusive license to Springer Nature Switzerland AG
About this chapter
Cite this chapter
Searight, H.R. (2019). Advance Directives, Do Not Resuscitate Orders, Hospice, Organ Transplantation and Physician Assisted Suicide. In: Ethical Challenges in Multi-Cultural Patient Care. SpringerBriefs in Ethics. Springer, Cham. https://doi.org/10.1007/978-3-030-23544-4_5
Download citation
DOI: https://doi.org/10.1007/978-3-030-23544-4_5
Published:
Publisher Name: Springer, Cham
Print ISBN: 978-3-030-23543-7
Online ISBN: 978-3-030-23544-4
eBook Packages: Religion and PhilosophyPhilosophy and Religion (R0)