Abstract
There are over 14 million cancer survivors in the United States, a number that is expected to grow exponentially due to an aging population and improved methods for early detection and treatment [1]. The term “cancer survivor” has evolved over the years. The National Coalition for Cancer Survivorship (NCCS) had originally defined the survival period as the time period from diagnosis through the balance of life, but has recently expanded its definition to include family, friends, and caregivers [2]. In the pivotal Institute of Medicine (IOM) report “From Cancer Patient to Cancer Survivor: Lost in Transition,” the importance of addressing the ongoing physical and psychosocial challenges of cancer survivors was emphasized to encourage the multidisciplinary approach to survivorship as a distinct phase of the cancer continuum [3]. The report recommended that essential components of survivorship care include prevention and detection of new cancers, surveillance for recurrence, genetic evaluation, addressing the physical and psychosocial consequences of cancer and its treatment, and the coordination of care between specialists and primary care providers (PCPs).
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
American Cancer Society. Cancer treatment survivorship facts and figures 2014–2015. http://www.cancer.org/research/cancerfactsstatistics/survivor-facts-figures. Accessed 14 Jul 2014.
National Coalition for Cancer Survivorship. The history of the National Coalition for Cancer Survivorship. http://www.canceradvocacy.org/about-us/our-history/. Accessed 14 Jul 2014.
Hewitt M, Greenfield S, Stovall E. From cancer patient to cancer survivor: lost in transition. Washington, DC: National Academies Press; 2005.
American Society of Clinical Oncology. ASCO answers cancer survivorship. http://www.cancer.net/survivorship/about-survivorship. Accessed 14 Jul 2014.
Rowland J, Hewitt M, Ganz P. Cancer survivorship: a new challenge in delivering quality care. J Clin Oncol. 2006;24(32):5101–4.
McCabe M, Bhatia S, Oeffinger K, Reaman G, Tyne C, Wollins D, et al. American Society of Clinical Oncology Statement: achieving high-quality cancer survivorship care. J Clin Oncol. 2013;31(5):631–40. doi:10.1200/JCO.2012.46.6854.
Landier W, Bhatia S, Eshelman D, Forte K, Sweeney T, Hester A, et al. Children’s Oncology Group long-term follow-up guidelines from the Children’s Oncology Group Late Effects Committee and Nursing Discipline. J Clin Oncol. 2004;22:4979–90. doi:10.1200/JCO.2004.11.032.
Howell D, Hack T, Oliver T, Chulak T, Mayo S, Aubin M, et al. Models of care for post-treatment follow-up of adult cancer survivors: a systematic review and quality appraisal of the evidence. J Cancer Surviv. 2012;6:359–71.
McCabe M, Jacobs L. Clinical update: survivorship care-models and programs. Semin Oncol Nurs. 2012;28(3):e1–8. doi:10.1016/j.soncn.2012.05.001.
O’Brien M, Tompkins-Stricker C, Foster J, Ness K, Ginsburg-Arlen A, Schwartz R. Navigating the seasons of survivorship in community oncology. Clin J Oncol Nurs. 2014;18(1):9–14. doi:10.1188/14.CJON.S1.9-14.
Sherwood E, Rosenstein D. Survivorship care settings. In: Lester J, Schmitt P, editors. Cancer rehabilitation and survivorship. Pittsburgh: Oncology Nursing Society; 2011. p. 25–32.
Ness S, Kokal J, Fee-Schroeder K, Novotny P, Satale D, Barton D. Concerns across the survivorship trajectory: results from a survey of cancer survivors. Oncol Nurs Forum. 2013;40(1):35–42.
Stricker C, Jacobs L. Physical late effects in adult cancer survivors. Oncology. 2008;22(8 (Nurse Edition)):33–42.
Vachon M. Psychosocial distress and coping after cancer treatment. Am J Nurs. 2006;106(3):26–31.
Rechis R, Reynolds K, Beckjord E, Nutt S, Burns R, Schaefer J. “I learned to live with it” is not good enough: challenges reported by post-treatment cancer survivors in the LIVESTRONG surveys. A LIVESTRONG Report 2010. http://www.livestrong.org/pdfs/3-0/LSSurvivorSurveyReport_final. Accessed 15 Jul 2014.
Pelusi J. Sexuality and body image. Am J Nurs. 2006;106(3):32–8.
Landier W. Survivorship care: essential components and models of delivery. Oncology. 2009;23(4 (Nurse Edition)):1–10.
Mayer E, Gropper A, Neville B, Partridge A, Cameron D, Winer E, et al. Breast cancer survivors’ perceptions of survivorship care options. J Clin Oncol. 2011;30(2):158–63. doi:10.1200/JCO.2011.36.9264.
Rowland J. Cancer survivorship: rethinking the cancer control continuum. Semin Oncol Nurs. 2006;24(3):145–52.
Earle C, Ganz P. Cancer survivorship care: don’t let the perfect be the enemy of the good. J Clin Oncol. 2012;30(30):3764–8. doi:10.1200/JCO2012.41.7667.
Burbage D, Siegel S.The embedded nurse navigator model: a novel approach to providing survivorship care in a community cancer center. Oncol Issues. 2015;30(5):36–41.
Tompkins-Stricker C, O’Brien M. Implementing the Commission on Cancer standards for survivorship care plans. Clin J Oncol Nurs. 2014;18(1):15–22. doi:10.1188/14.CJON. S1.15-22.
Trotter K, Frazier A, Hendricks C, Scarsella H. Innovation in survivor care: group visits. Clin J Oncol Nurs. 2011;15(2):e24–33. doi:10.1188/11.E24-E33.
Grunfield E, Earle C. The interfaces between primary and oncology specialty care: treatment through survivorship. J Natl Cancer Inst Monogr. 2010;40:25–30.
Lester J, Wessels A, Jung Y. Oncology nurses’ knowledge of survivorship care planning: the need for education. Oncol Nurs Forum. 2014;41(2):e35–43. doi:10.1188/14.ONF.E35-E43.
American College of Surgeons Cancer Program Standards 2012. Version 1.1: Ensuring Survivor-Centered Care Manual. www.facs.org/cancer/coc/programstandards2012.html. Accessed 16 Jul 2014.
Mayer D. Survivorship care plans: necessary but not sufficient? Clin J Oncol Nurs. 2014;18(1):7–8. doi:10.1188/14.CJON.S1.7-8.
Mayer D, Gertsel A, Leak A, Smith S. Patient and provider preferences for survivorship care plans. J Oncol Pract. 2011;8(4):e80–6. doi:10.1200/JOP.2011.000401.
Salz T, McCabe M, Onstad E, Baxl S, Deming R, Franco R, et al. Survivorship care plans: is there buy-in from community oncology providers? Cancer. 2014;120(5):722–30. doi:10.1002/cncr.28472.
Sprague B, Dittus K, Pace C, Dulko D, Pollack L, Hawkins N, et al. Patient satisfaction with breast and colorectal cancer survivorship care plans. Clin J Oncol Nurs. 2013;17(3):266–72.
Grunfield E, Julian J, Pond G, Maunsell E, Coyle D, Folkes A, et al. Evaluating survivorship care plans: results of a randomized, clinical trial of patients with breast cancer. J Clin Oncol. 2011;29(36):4755–62. doi:10.1200/JCO.2011.36.8373.
Ashing-Giwa K, Tapp C, Brown S, Fulcher G, Smith J, Mitchell E, et al. Are survivorship care plans responsive to African-American breast cancer survivors? Voices of survivors and advocates. J Cancer Surviv. 2013;7:283–91. doi:10.1007/s11764-013-0270-1.
Pedro L, Schmiege S. Rural living as context: a study of disparities in long-term cancer survivors. Oncol Nurs Forum. 2014;41(3):e211–9. doi:10.1188/14.ONF.E211-E219.
Buxton D, Lazenby M, Daugherty A, Kennedy V, Wagner L, Fann J, et al. Distress screening for oncology patients: practical steps for developing and implementing a comprehensive distress screening program. Oncol Issues. 2014;29(1):49–52.
La Tour K. The nurse’s guide to cancer survivorship care plans. Dallas: Cure Media Group; 2014.
Forsythe L, Alfano C, Leach C, Ganz P, Stefanek M, Rowland J. Who provides psychosocial follow-up care for post-treatment cancer survivors? A survey of medical oncologists and primary care providers. J Clin Oncol. 2012;30(23):2897–905. doi:10.1200/JCO.2011.39.9832.
Petty L, Lester J. Distress screening in chronic disease: essential for cancer survivors. J Adv Pract Oncol. 2014;5(2):107–14.
Digiulo S. ASCO releases first guidelines on survivorship care. Oncology Times. 25 May 2014. p. 9–10.
Denlinger C, Carlson R, Are M, Baker K, Davis E, Edge S, et al. Survivorship: introduction and definition. J Natl Compr Canc Netw. 2014;12:34–45.
Silver J, Baima J, Mayer R. Impairment-driven cancer rehabilitation: an essential component of quality care and survivorship. CA Cancer J Clin. 2013;63:295–317.
Harding M. Health-promotion behaviors and psychological distress in cancer survivors. Oncol Nurs Forum. 2012;39(2):e132–40. doi:10.1188/12.ONF.E132-E140.
Rosales A, Byrne D, Burnham C, Watts L, Clifford K, Zuckerman D, et al. Comprehensive survivorship care with cost and revenue analysis. J Oncol Pract. 2014;10(2):e81–5. doi:10.1200/JOP.2013.000945.
Rock C, Doyle C, Demark-Wahnefried W, Meyerhardt J, Courneya K, Schwartz A, et al. Nutrition and physical activity guidelines for cancer survivors. CA Cancer J Clin. 2012;62(4):243–74.
Bower J, Garet D, Sternlieb B, Ganz P, Irwin M, Olmstead R, et al. New research suggests yoga may help with fatigue-related symptoms in breast cancer survivors: a randomized controlled trial. Cancer. 2012;118(5):3766–75. doi:10.1002/cncr.26702.
Klatt M. Mind-body wellness and integrative medicine. In: Lester J, Schmitt P, editors. Cancer rehabilitation and survivorship. Pittsburgh: Oncology Nursing Society; 2011. p. 317–25.
Economou D, Edington A, Deutsch A. Roles of the clinical nurse specialist and nurse practitioner in survivorship care. J Adv Pract Oncol. 2013;1(2):87–94.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2016 Springer International Publishing Switzerland
About this chapter
Cite this chapter
Burbage, D. (2016). Survivorship Care Planning. In: Alberts, D., Lluria-Prevatt, M., Kha, S., Weihs, K. (eds) Supportive Cancer Care. Springer, Cham. https://doi.org/10.1007/978-3-319-24814-1_6
Download citation
DOI: https://doi.org/10.1007/978-3-319-24814-1_6
Publisher Name: Springer, Cham
Print ISBN: 978-3-319-24812-7
Online ISBN: 978-3-319-24814-1
eBook Packages: MedicineMedicine (R0)