Skip to main content

End of Life Care in Neurological Disease

  • Chapter
  • First Online:
End of Life Care in Neurological Disease

Abstract

Neurological disease may present and progress in many different ways, according to the disease and the individual, and presents a challenge for care throughout the disease progression and particularly at the end of life. These issues include the variability of disease progression, associated cognitive change, complex treatments, and the concerns and problems encountered with inherited diseases. The use of triggers to identify deterioration and the possibility of end of life may be useful in allowing the most appropriate care to be provided, enabling the patient and family to maintain their quality of life.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 54.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  1. National End of Life Care programme. NEoLC intelligence network bulletin: deaths from neurodegenerative diseases in England 2002–2008. 2010. Access at http://www.endofiifecare-intelligence.org.uk. Accessed 14.4.12.

  2. World Health Organization. Palliative care. 2002. http://www.who.int/cancer/palliative/definition/en/. Accessed 14.4.12.

  3. National End of Life Care Strategy for England. London, UK: Department of Health. 2008. http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_086277. Accessed 17.4.12.

  4. Oliver D. Palliative care. In: Oliver D, Borasio GD, Walsh D, editors. Palliative care in amyotrophic lateral sclerosis – from diagnosis to bereavement. 2nd ed. Oxford: Oxford University Press; 2006.

    Chapter  Google Scholar 

  5. Maddocks I, Brew B, Waddy H, Williams I. Palliative neurology. Cambridge: Cambridge University Press; 2006.

    Google Scholar 

  6. Bede P, Hardiman O, O’Brannagain D. An integrated framework of early intervention palliative care in motor neurone disease as a model to progressive neurodegenerative diseases. Poster at European ALS Congress, Turin. 2009.

    Google Scholar 

  7. Oliver DJ, Turner MR. Some difficult decisions in ALS/MND. ALS. 2010;11:339–43.

    Article  Google Scholar 

  8. Dying Matters. National council for palliative care. http://www.dyingmatters.org. Accessed 28.4.12.

  9. National End of Life Care Programme. End of life care in long term neurological conditions – a framework for implementation. 2010. http://www.endofiifecareforadults.nhs.uk/assets/downloads/neurology_report___final___20101108_1.pdf Accessed 17.4.12.

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to David Oliver B.Sc., FRCP, FRCGP .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2013 Springer-Verlag London

About this chapter

Cite this chapter

Oliver, D., Silber, E. (2013). End of Life Care in Neurological Disease. In: Oliver, D. (eds) End of Life Care in Neurological Disease. Springer, London. https://doi.org/10.1007/978-0-85729-682-5_2

Download citation

  • DOI: https://doi.org/10.1007/978-0-85729-682-5_2

  • Published:

  • Publisher Name: Springer, London

  • Print ISBN: 978-0-85729-681-8

  • Online ISBN: 978-0-85729-682-5

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics