Skip to main content

Part of the book series: SpringerBriefs in Ethics ((BRIEFSETHIC))

  • 267 Accesses

Abstract

Socio-empirically informed, theoretically reflective, and comparative studies of lay moralities and expert bioethics can reveal how individual meanings and cultural scripts are closely interwoven. Abstract norms, social practices, and personal experiences are balanced, adjusted and weighed against each other. Moreover, social science, ethics and political philosophy are already expressed in lay persons’ perceptions and thinking. Emphasizing the local and contextual nature of the problems of bioethics is not enough; it needs to be explored and compared so that shared issues can be elicited. The approach we suggest is useful for heterogeneous, pluralistic contexts that require a reflective juxtaposition of the macro and the micro. Such democratic deliberation can lead to the formulation of socially accepted directions for future practices.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 54.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 69.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    We say here “typical German discourse,” because as comparative research has indicated, other lay groups (outside of Germany) rarely mention the historical reference to Nazi medicine or Nazi eugenics (Felt et al. 2010). This implies, however, not that eugenic practice is not addressed in other countries, but the reference to historical practice is particularly significant for German debates.

References

  • Atkinson P (1990) The ethnographic imagination. Routledge, London

    Google Scholar 

  • Bartmann P (2003) Physician-assisted suicide and euthanasia: German Protestantism, conscience and the limits of purely ethical reflection. Christ Bioeth 9:203–225

    Article  Google Scholar 

  • Birenbaum-Carmeli D (2010) Genetic relatedness and family formation in Israel: lay perceptions in the light of state policy. New Genet Soc 29(1):73–85

    Article  Google Scholar 

  • Brody B (2002) Freedom and responsibility in genetic testing. Soc Philos Policy 19(2):343–350

    Article  Google Scholar 

  • Cantor MD (2004) Advance care planning in long-term care facilities. J Am Med Dir Assoc 5(22):73–80

    Article  Google Scholar 

  • Cassirer E (1946) Language and myth. Harper & Brothers, New York

    Google Scholar 

  • Cicourel A (1964) Method and measurement in sociology. Free Press, Glencoe

    Google Scholar 

  • Clifford J, Marcus G (eds) (1986) Writing culture. University of California Press, Berkeley

    Google Scholar 

  • Daniels N (1979) Wide reflective equilibrium and theory acceptance in ethics. J Philos 76:21–46

    Article  Google Scholar 

  • Daniels N (1996) Wide reflective equilibrium in practice. In: Sumner LW, Boyle J (eds) Philosophical perspectives on bioethics. University of Toronto Press, Toronto, pp 96–114

    Google Scholar 

  • Deane-Drummond C (2006) Genetics and Christian ethics. Cambridge University Press, Cambridge

    Google Scholar 

  • Ebbesen M, Pedersen BD (2007) Using empirical research to formulate normative ethical principles in biomedicine. Med Health Care Philos 10(1):33–48

    Article  Google Scholar 

  • Elgin CZ (1999) Considered judgment. Princeton University Press, Princeton

    Book  Google Scholar 

  • Emanuel EJ, Emanuel LL (1992) Four models of the physician-patient relationship. JAMA 267(16):2221–2226

    Article  Google Scholar 

  • Fabian J (1983) Time and the other: how anthropology makes its objects. Columbia University Press, New York

    Google Scholar 

  • Felt U, Fochler M, Winkler P (2010) Coming to terms with biomedical technologies in different technopolitical cultures: a comparative analysis of focus groups on organ transplantation and genetic testing in Austria, France and the Netherlands. Sci Technol Human Values 34(4):525–553

    Article  Google Scholar 

  • Fraser N (1989) Unruly practices: power, discourse, and gender in contemporary social theory. University of Minnesota Press, Minneapolis

    Google Scholar 

  • Fricker M (2009) Epistemic injustice: power and the ethics of knowledge. Oxford University Press, Oxford

    Google Scholar 

  • Garfinkel H (1967) Studies in ethnomethodology. Prentice Hall, Englewood Cliffs

    Google Scholar 

  • Gedge E, Giacomini M, Cook D (2007) Withholding and withdrawing life support in critical care settings: ethical issues concerning consent. J Med Ethics 33:215–218

    Article  Google Scholar 

  • Gergen KJ (1991) The saturated self. Basic Books, New York

    Google Scholar 

  • Gergen KJ (1994) Realities and relationships. Harvard University Press, Cambridge

    Google Scholar 

  • Gert B (2004) Common morality: deciding what to do. Oxford University Press, Oxford

    Book  Google Scholar 

  • Graumann S (2003) Sind “Biomedizin” und “Bioethik” behindertenfeindlich? In: Akademie für Ethik in der Medizin e.V. (ed) Behinderung und medizinischer Fortschritt. Dokumentation der gleichnamigen Tagung vom 14–16 April 2003 in Bad Boll. Göttingen, pp 71–81. http://wwwuser.gwdg.de/~asimon/bb_2003.pdf. Accessed 30 Jul 2015

  • Gross ML, Ravitsky V (2003) Israel: bioethics in a Jewish-democratic state. Camb Q Healthc Ethics 12:3247–3255

    Article  Google Scholar 

  • Gubrium J, Holstein J (1998) Narrative practice and the coherence of personal stories. Sociol Quart 39(1):163–185

    Article  Google Scholar 

  • Habermas J (2003) The future of human nature. Polity Press, Cambridge

    Google Scholar 

  • Hahn S (2000) Überlegungsgleichgewicht(e). Prüfung einer Rechtfertigungsmetapher. Alber, Freiburg

    Google Scholar 

  • Hashiloni-Dolev Y, Shkedi S (2007) New reproductive technologies and family ethics: pre- implantation genetic diagnosis for sibling donor in Israel and Germany. Soc Sci Med 65(10):2081–2092

    Article  Google Scholar 

  • Hauerwas S (1986) Suffering presence. University of Notre Dame Press, Notre Dame

    Google Scholar 

  • Heritage J (1984) Garfinkel and ethnomethodology. Prentice Hall, Englewood Cliffs

    Google Scholar 

  • Holm S, Irving L (2004) Research ethics committees in the social sciences. In: Kempf-Leonard K (ed) Encyclopedia of social measurement. Academic Press, London, pp 397–402

    Google Scholar 

  • Hoshino K (ed) (1997) Japanese and Western bioethics. Kluwer, Dordrecht

    Google Scholar 

  • Johnstone D (2001) An introduction to disability studies, 2nd edn. Fulton, London

    Google Scholar 

  • Keenan T (1997) Fables of responsibility: aberrations and predicaments in ethics and politics. Stanford University Press, Stanford

    Google Scholar 

  • Köbsell S (2003) Die aktuelle Biomedizin aus Sicht der Disability Studies. In: Schicktanz S, Tannert C, Wiedemann P (eds) Kulturelle Aspekte der Biomedizin. Campus, Frankfurt, pp 160–186

    Google Scholar 

  • Kreager P, Schröder-Butterfill E (eds) (2005) Aging without children: European and Asian perspectives on elderly access to support networks. Berghahn Press, Oxford

    Google Scholar 

  • Lenhard W (2003) Der Einfluss pränataler Diagnostik und selektiven Fetozids auf die Inzidenz von Menschen mit angeborener Behinderung. Heilpädagogische Forschung 29(4):165–176

    Google Scholar 

  • Lindemann H, Verkerk M, Walker MU (2009) Naturalized bioethics: toward responsible knowing and practice. Cambridge University Press, Cambridge

    Google Scholar 

  • Macintyre A (1984) After virtue: a study in moral theory. Duckworth, London

    Google Scholar 

  • Mansbridge J, Bohman J, Chambers S et al (2010) The place of self-interest and the role of power in deliberative democracy. J Polit Philos 18(1):64–100

    Article  Google Scholar 

  • Nowotny H, Scott P, Gibbons M (2001) Re-thinking science: knowledge and the public in an age of uncertainty. Polity Press, Cambridge

    Google Scholar 

  • Prainsack B (2006) Negotiating life: the regulation of embryonic stem cell research and human cloning in Israel. Soc Stud Sci 36(2):173–205

    Article  Google Scholar 

  • Prainsack B, Firestine O (2006) “Science for survival”: biotechnology regulation in Israel. Sci Publ Policy 33(1):33–46

    Article  Google Scholar 

  • Raz A (2005) A note on inter-viewing: using symbolic interactionism for interview analysis. Stud Symbolic Inter 28:323–339

    Article  Google Scholar 

  • Raz A, Schicktanz S (2009a) Lay perceptions of genetic testing in Germany and Israel: the interplay of national culture and individual experience. New Genet Soc 28(4):401–414

    Google Scholar 

  • Raz A, Schicktanz S (2009b) Diversity and uniformity in genetic responsibility: moral attitudes of patients, relatives and lay people in Germany and Israel. Med Health Care Philos 12(4):433–442

    Google Scholar 

  • Rosner F (1991) Modern medicine and Jewish ethics, 2nd edn. KTAV, Hoboken

    Google Scholar 

  • Schicktanz S (2009a) Zum Stellenwert von Betroffenheit, Öffentlichkeit und Deliberation im empirical turn der Medizinethik. Ethik in der Medizin 21(3):223–234

    Google Scholar 

  • Schicktanz S (2009b) Interpreting advance directives: ethical considerations of the interplay between personal and cultural identity. Health Care Anal 17(2):158–171

    Google Scholar 

  • Schicktanz S (2012) Epistemische Gerechtigkeit. Sozialempirie und Perspektivenpluralismus in der Angewandten Ethik. Dtsch Z Philos 60(2):1–15

    Google Scholar 

  • Schicktanz S, Schweda M (2015) Inklusive Deliberation: Zur Einbeziehung von Bürger- und Betroffenenperspektiven in medizinethische und gesundheitspolitische Entscheidungsprozesse. In: Rauprich O, Jox R, Marckmann G (eds) Vom Konflikt zur Lösung. Mentis, Münster (in press)

    Google Scholar 

  • Shotter J, Gergen KJ (eds) (1989) Texts of identity. Sage, London

    Google Scholar 

  • Sprung CL, Maia P, Bulow HH et al (2007) The importance of religious affiliation and culture on end-of-life decisions in European intensive care units. J Intensive Care Med 33(10):1732–1739

    Article  Google Scholar 

  • Stirling A (2008) “Opening up” and “closing down”: power, participation, and pluralism in the social appraisal of technology. Sci Technol Human Values 33(2):262–294

    Article  Google Scholar 

  • Tao J (ed) (2002) Cross-cultural perspectives on the (im)possibility of global bioethics. Kluwer, Dordrecht

    Google Scholar 

  • Van der Heide A, Deliens L, Faisst K et al (2003) End-of-life decision-making in six European countries: descriptive study. Lancet 362(9381):345–350 (on behalf of the EURELD consortium)

    Google Scholar 

  • van Thiel GJMW, van Delden J (2010) Reflective equilibrium as a normative empirical model. Ethical Perspect 17:183–202

    Article  Google Scholar 

  • Van Tongeren P (1996) Ethics, tradition and hermeneutics. Ethical Perspect 3:175–184

    Article  Google Scholar 

  • Wahrman MZ (2002) Brave new Judaism: when science and scripture collide. Brandeis University Press, Hanover

    Google Scholar 

  • Walter J (1999) Theological issues in genetics. Theol Stud 60(1):124–134

    Article  Google Scholar 

  • Young IM (2002) Inclusion and democracy. Oxford University Press, Oxford

    Book  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Aviad E. Raz .

Rights and permissions

Reprints and permissions

Copyright information

© 2016 The Author(s)

About this chapter

Cite this chapter

Raz, A.E., Schicktanz, S. (2016). Final Conclusion: Disentangling the Micro and the Macro in Bioethics. In: Comparative Empirical Bioethics: Dilemmas of Genetic Testing and Euthanasia in Israel and Germany. SpringerBriefs in Ethics. Springer, Cham. https://doi.org/10.1007/978-3-319-32733-4_9

Download citation

Publish with us

Policies and ethics