Skip to main content

IIlness Narratives

  • Reference work entry
Encyclopedia of Medical Anthropology
  • 553 Accesses

The Illness Autobiography

Over the last quarter century the illness biography or “pathography,” as some prefer to call it, has emerged as a popular literary form as well as a primary data source for medical anthropologists. Through vivid, personal stories seriously ill patients have attempted to educate medical professionals and the general public about the impact of disease on work, family life, identity, and self-image as well as to recount their experiences with impersonal, bureaucratic, medical institutions. While such narratives have been written by people from various walks of life, and deal with a variety of different medical conditions, the stories share many common narrative elements: mystery (disease is unexpected or difficult to diagnose), betrayal by one’s ownbody, conflict with medical professionals or medical bureaucracies, the failure of medical science to heal, the need for self-reliance, and, generally, but not always, a return to good health. An early and successful...

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 599.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Hardcover Book
USD 549.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  1. Ansay, A. M. (2001). Limbo: A memoir. New York: William Morrow.

    Google Scholar 

  2. Becker, G. (1994). Metaphors of disrupted lives: Infertility and Cultural Constructions of Continuity, Medical Anthropological Quarterly 8, 383–410.

    Article  Google Scholar 

  3. Bloom, F. (2001). “New beginnings”: A case study in gay men’s changing perceptions of quality of life during the course of HIV Infection. Medical Anthropology Quarterly, 15(1), 38–57.

    Article  Google Scholar 

  4. Briggs, C. (1986). Learning how to ask: A sociolinguistic appraisal of the role of the interview in social science research. Cambridge, UK: Cambridge University Press.

    Google Scholar 

  5. Broyard, A. (1993). Intoxicated by my illness and other writings on life and death. New York: Fawcett Columbine.

    Google Scholar 

  6. Comaroff, J. (1976). A bitter pill to swallow; Placebo therapy in general practice. Sociological Review, 24(1), 79.

    Google Scholar 

  7. Cousins, N. (1979). Anatomy of an illness as perceived by the patient: Reflections on healing and regeneration. New York: Bantam Books.

    Google Scholar 

  8. Cousins, N. (1983). The healing heart: Antidotes to panic and helplessness. New York: Norton.

    Google Scholar 

  9. Csordas, T. (1983). The rhetoric of transformation in ritual healing. Culture, Medicine and Psychiatry, 7, 333–376.

    Article  Google Scholar 

  10. Csordas, T. (1988). Elements of charismatic persuasion and healing. Medical Anthropology Quarterly, 2, 102–120.

    Article  Google Scholar 

  11. Dorris, M. (1990). The broken cord. New York: Harper Collins.

    Google Scholar 

  12. Dubos, R. (1965). Man adapting. New Haven, CT: Yale University Press.

    Google Scholar 

  13. Dubos, R. (1968). Men, medicine and environment. New York: Praeger.

    Google Scholar 

  14. Early, E. (1985). Catharsis and creation: The everyday narratives of Baladi women of Cairo. Anthropological Quarterly, 58, 172–181.

    Article  Google Scholar 

  15. Ezzy, D. (2000). Illness narratives: Time, hope and HIV. Social Science and Medicine, 50(5), 605–617.

    Article  Google Scholar 

  16. Fabrega, H., Jr. et al. (1976). Culture, language and the shaping of illness: An illustration based on pain. Journal of Psychosomatic Research, 20(4), 323–337.

    Article  Google Scholar 

  17. Farmer, P. (1994). AIDS-talk and the constitution of cultural models. Social Science and Medicine, 38(6), 801–809.

    Article  Google Scholar 

  18. Finkler, K. (1983). Spiritist healers in Mexico. South Hadley, MA: Bergin & Garvey.

    Google Scholar 

  19. Frank, A. (1995). At the will of the body: Reflections on illness. Boston: Houghton Mifflin.

    Google Scholar 

  20. Garcia-Marquez, G., & Rabasa, G. (1996). Chronicles of a death foretold. London: Penguin.

    Google Scholar 

  21. Garro, L. (1994). Narrative representations of chronic illness experience: Cultural models of illness, mind, and body in stories concerning the temporomandibular joint (TMJ). Social Science and Medicine, 38(6), 775–788.

    Article  Google Scholar 

  22. Good, B. J., (1994). Medicine, rationality and experience: An anthropological perspective. London: Cambridge University Press.

    Google Scholar 

  23. Good, B. J., & DelVecchio Good, M.-J. (1994). In the subjunctive mode: Epilepsy narratives in Turkey. Social Science and Medicine, 38(6), 835–842.

    Article  Google Scholar 

  24. Goodman, Y. (2001). Dynamics of inclusion and exclusion: Comparing illness narratives of Haredi male patients and their Rabbis. Culture, Medicine and Psychiatry, 25(2), 169–194.

    Article  Google Scholar 

  25. Gould, S. J. (1998). The median isn’t the message. In T. Greenhalgh & B. Hurwitz (Eds.), Narrative based medicine: Dialogue and discourse in clinical practice. London: BMJ Books.

    Google Scholar 

  26. Gray, D. E. (2001). Accomodation, resistance and transcendence: Three narratives of autism. Social Science and Medicine, 53(9), 1247–1257.

    Article  Google Scholar 

  27. Greenhalgh, T., & Hurwitz, B. (1998). Narrative-based medicine: Dialogue and discourse in clinical practice. London: BMJ Books.

    Google Scholar 

  28. Holmes, J. (1998). Narrative in psychotherapy. In T. Greenhalgh & B. Hurwitz (Eds.), Narrative based medicine: Dialogue and discourse in clinical practice. London: BMJ Books.

    Google Scholar 

  29. Hunt, L., Valenzuela, M., & Pugh, J. (1998). Porque Me Toca a Mi: Mexican American diabetes patients’ causal stories and their relationship to treatment behaviors. Social Science and Medicine, 46(8), 959–969.

    Article  Google Scholar 

  30. Hunter, K. (1991). Doctors’ stories: The narrative structure of medical knowledge. Princeton, NJ: Princeton University Press.

    Google Scholar 

  31. Jamison, K. R. (1995). An Unquiet Mind. New York: Knopf.

    Google Scholar 

  32. Jefferson, G. (1978). Sequential aspects of storytelling in conversation. In J. Schenkein (Ed.), Studies in the organization of conversational interaction. New York: Academic Press.

    Google Scholar 

  33. Kangas, I. (2001). Making sense of depression: Perceptions of melancholia in lay narratives. An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 5(1), 76–92.

    Article  Google Scholar 

  34. Kapferer, B. (1983). A celebration of demons: Exorcism and the aesthetics of healing in Sri Lanka. Bloomington: Indiana University Press.

    Google Scholar 

  35. Kay, S., & Purvis, I. (1998). The electronic medical record and the “story stuff”: A narrativistic model. In T. Greenhalgh & B. Hurwitz (Eds.), Narrative based medicine: Dialogue and discourse in clinical practice. BMJ Books.

    Google Scholar 

  36. Kleinman, A. (1980). Patients and healers in the context of culture: An exploration of the borderland between anthropology, medicine and psychiatry. Berkeley: University of California Press.

    Google Scholar 

  37. Kleinman, A. (1988). The illness narratives: Suffering, healing and the human condition. New York: Basic Books.

    Google Scholar 

  38. Kleinman, A., Kunstadter, A., Russell, E., & Gate, J. (Eds.). (1978). Culture and healing in Asian societies: Anthropological, psychiatric and public health studies. Cambridge, MA: Shenkman.

    Google Scholar 

  39. Labov, W., & Waletsky, J. (1967). Narrative analysis: Oral versions of personal experience. In J. Helms (Ed.), Essays in the verbal and visual arts. Seattle: University of Washington.

    Google Scholar 

  40. Laderman, C. (1991). Taming the wind of desire: Psychology, medicine and aesthetics in Malay Shamanistic performance. Berkeley: University of California Press.

    Google Scholar 

  41. Langellier, K. (1989). Personal narratives: Perspectives on theory and research. Text and Performance Quarterly, 9, 243–276.

    Article  Google Scholar 

  42. Langellier, K., & Sullivan, C. (1998). Breast talk in cancer illness. Qualitative Health Research, 8(1), 76–94.

    Article  Google Scholar 

  43. Launer, J. (1998). Narrative and mental health in primary care. In T. Greenhalgh & B. Hurwitz (Eds.), Narrative based medicine: Dialogue and discourse in clinical practice. BMJ Books.

    Google Scholar 

  44. Levi-Strauss, C. (1963a). The effectiveness of symbols. In Structural anthropology. New York: Basic Books. pp. 186–205.

    Google Scholar 

  45. Levi-Strauss, C. (1963b). The sorcerer and his magic. In Structural anthropology. New York: Basic Books. pp. 167–185.

    Google Scholar 

  46. Loewe, R., & Freeman, J. (2000). Interpreting diabetes mellitus: Differences between patient and provider models of disease and their implications for clinical practice. Culture, Medicine and Psychiatry, 24, 379–401.

    Article  Google Scholar 

  47. Loewe, R., Freeman, J., Schwartzman, J., Quinn, L., & Zukerman, S. (1998). Doctor talk and diabetes: Towards an analysis of the clinical construction of chronic illness. Social Science and Medicine, 47(9), 1267–1276.

    Article  Google Scholar 

  48. Lovell, A. (1997). “The city is my mother”: Narratives of schizophrenia and homelessness. American Anthropologist, 99, 355–368.

    Article  Google Scholar 

  49. Mattingly, C. (1998). Healing dramas and clinical plots: The narrative structure of experience. Cambridge, UK: Cambridge University Press.

    Google Scholar 

  50. Miglione, S. (2001). From illness narratives to social commentary: A Pirandellian approach to “nerves.” Medical Anthropological Quarterly, 15(1), 100–125.

    Article  Google Scholar 

  51. Mishler, E. (1995). Narrative accounts in clinical and research interviews. In B. L. Gunderson, P. Linell, & B. Nordberg (Eds.), The Construction of Professional Discourse. London: Longman.

    Google Scholar 

  52. Morrison, M. (1991). White rabbit: A doctor’s story of her addiction and recovery. New York: Berkley Books.

    Google Scholar 

  53. Murphy, R. (1987). The body silent. New York: Norton.

    Google Scholar 

  54. Polanyi, L. (1985). Conversational storytelling: Discourse and dialogue. In T. Van Dijk (Ed.), Handbook of discourse analysis (Vol. 3, pp. 98–115). London: Academic Press.

    Google Scholar 

  55. Price, L. (1987). Ecuadorian illness stories: Cultural knowledge in natural discourse. In D. Holland & N. Quinn (Eds.), Cultural models in language and thought. Cambridge, UK: Cambridge University Press.

    Google Scholar 

  56. Reissman, K. (1993). Narrative analysis [Qualitative research methods series, No. 30]. Newbury Park, CA: Sage.

    Google Scholar 

  57. Roney, L. (1999). Sweet invisible body: Reflections on life with diabetes. New York: Henry Holt.

    Google Scholar 

  58. Sacks, O. (1984). A leg to stand on. New York: Summit Books.

    Google Scholar 

  59. Scott, A. (1998). Nursing, narrative and the moral imagination. In T. Greenhalgh & B. Hurwitz (Eds.), Narrative based medicine: Dialogue and discourse in clinical practice. BMJ Books.

    Google Scholar 

  60. Squier, H. (1998). Teaching humanities in the undergraduate medical curriculum. In T. Greenhalgh & B. Hurwitz (Eds.), Narrative based medicine: Dialogue and discourse in clinical practice. BMJ Books.

    Google Scholar 

  61. Stein, H. (1985). The contest for control: A case of diabetes in multiple contexts. In Psychodyamics of medical practice: Unconscious factors in patient care. Berkeley: University of California Press.

    Google Scholar 

Download references

Authors

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2004 Kluwer Academic/Plenum Publishers

About this entry

Cite this entry

Loewe, R. (2004). IIlness Narratives. In: Ember, C.R., Ember, M. (eds) Encyclopedia of Medical Anthropology. Springer, Boston, MA. https://doi.org/10.1007/0-387-29905-X_6

Download citation

  • DOI: https://doi.org/10.1007/0-387-29905-X_6

  • Publisher Name: Springer, Boston, MA

  • Print ISBN: 978-0-306-47754-6

  • Online ISBN: 978-0-387-29905-1

  • eBook Packages: Springer Book Archive

Publish with us

Policies and ethics