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Design and implementation of a web-based Tailored Gymnasium to enhance self-management of Fibromyalgia

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Abstract

The aim of this article is to describe the design and development of an online gymnasium that proposes personalized exercise videos to users affected by fibromyalgia. Fibromyalgia syndrome is a chronic condition characterized by widespread pain in muscles, ligaments and tendons, usually associated with sleep disorders and fatigue. Physical exercise is considered as an important component of non-pharmacological treatments of this pathology, and the internet is praised as a powerful resource to promote and improve physical exercise. Yet, while online personalization of health interventions to consumers must be grounded on empirically based guidelines, guidelines for fibromyalgia-targeted exercises are scant. The achievements presented in this paper are twofold. Firstly, we illustrate how we reached definition of the relevant factors for tailoring exercise videos in relation to fibromyalgia. Secondly, we explain the general framework of the application that is composed of an interview module (that investigates the determinant values of a specific user), an adaptation module (presenting the tailored set of exercises) and a logging component (used to monitor users’ interactions with the website). The paper concludes with a discussion on the strengths and weaknesses of the proposed approach.

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References

  • American College of Sport Medicine: ACSM’s Guidelines for Exercise Testing and Prescription. Lippincott Williams & Wilkins, Baltimore (2005)

    Google Scholar 

  • Annemans L., Wesseley S., Spaepen E. et al.: Health economic consequences related to the diagnosis of fibromyalgia syndrome. Arthritis Rheum. 58(3), 895–902 (2008)

    Article  Google Scholar 

  • Arnold L.M., Bradley L.A., Clauw D.J. et al.: Evaluating and diagnosing fibromyalgia and comorbid psychiatric disorders. J. Clin. Psychiatry 69(10), e28 (2008)

    Article  Google Scholar 

  • Belt N.K., Kronholm E., Kauppi M.J.: Sleep problems in fibromyalgia and rheumatoid arthritis compared with the general population. Clin. Exp. Rheumatol. 27(1), 35–41 (2009)

    Google Scholar 

  • Bennett R., Jones J., Turk D.C. et al.: An Internet survey of 2,596 people with fibromyalgia. BMC Musculoskeletal Disord. 9, 8–27 (2007)

    Google Scholar 

  • Brosseau L., Wells G.A., Tugwell P. et al.: Ottawa panel evidence-based clinical practice guidelines for aerobic fitness exercises in the management of fibromyalgia. Phys. Ther. 88(7), 857–871 (2008)

    Article  Google Scholar 

  • Brusilovsky P.: Methods and techniques of adaptive hypermedia. User Model. User-Adapt. Interact. 6(2–3), 87–129 (1996)

    Article  Google Scholar 

  • Brusilovsky P.: Adaptive hypermedia. User Model. User-Adapt. Interact. 11(1–2), 87–110 (2001)

    Article  MATH  Google Scholar 

  • Brusilovsky P., Pesin L.: Adaptive navigation support in educational hypermedia: an evaluation of ISIS-Tutor. J. Comput. Inform. Technol. 6(1), 27–38 (1998)

    Google Scholar 

  • Buchanan B., Moore J., Forsythe D., Carenini G., Ohlsson S., Banks G.: An intelligent interactive system for delivering individualized information to patients. Artif. Intell. Med. 7(2), 117–154 (1995)

    Article  Google Scholar 

  • Busch A.J., Thille P., Barber K.A. et al.: Best practice: E-model—prescribing physical activity and exercise for individuals with fibromyalgia. Physiother. Theory Pract. 24(3), 151–166 (2008a)

    Article  Google Scholar 

  • Busch A.J., Schachter C.L., Overend T.J. et al.: Exercise for fibromyalgia: a systematic review. J. Rheumatol. 35(6), 1130–1144 (2008b)

    Google Scholar 

  • Buskila D., Cohen H.: Comorbidity of fibromyalgia and psychiatric disorders. Curr. Pain Headache Rep. 11(5), 333–338 (2007)

    Article  Google Scholar 

  • Carville S.F., Arendt-Nielsen S., Bliddal H. et al.: EULAR evidence-based recommendations for the management of fibromyalgia syndrome. Ann. Rheum. Dis. 67(4), 536–541 (2008)

    Article  Google Scholar 

  • Cawsey A.J., Jones R.B., Pearson J.: The evaluation of a personalized health information system for patients with cancer. User Model. User-Adapt. Interact. 10(1), 47–72 (2000)

    Article  Google Scholar 

  • Choy E., Perrot S., Leon T. et al.: A patient survey of the impact of fibromyalgia and the journey to diagnosis. BMC Health Serv. Res. 10, 102–110 (2010)

    Article  Google Scholar 

  • Clauw D.J.: Assessing and diagnosing fibromyalgia in the clinical setting. J. Clin. Psychiatry 69(11), e33 (2008)

    Article  Google Scholar 

  • Eysenbach G.: The law of attrition. J. Med. Internet Res. 7(1), e11 (2005)

    Article  Google Scholar 

  • Eysenbach G., Powell J., Kuss O. et al.: Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review. J. Am. Med. Assoc. 287(20), 2691–2700 (2002)

    Article  Google Scholar 

  • Goldenberg D.L.: Psychological symptoms and psychiatric diagnosis in patients with fibromyalgia. J. Rheumatol. 19(Suppl. Nov.), 127–130 (1989)

    Google Scholar 

  • Goldenberg D.L.: Multidisciplinary modalities in the treatment of fibromyalgia. J. Clin. Psychiatry 69(Suppl. 2), 30–34 (2008)

    Google Scholar 

  • Goldenberg D.L., Burckhardt C., Crofford L.: Management of fibromyalgia syndrome. J. Am. Med. Assoc. 292(19), 2388–2395 (2004)

    Article  Google Scholar 

  • Häuser W., Thieme K., Turk D.C.: Guidelines on the management of fibromyalgia syndrome—a systematic review. Eur. J. Pain 14(1), 5–10 (2009)

    Article  Google Scholar 

  • Ittersum M.W., van Wilgen C.P., Hilberdink W.K.H.A. et al.: Illness perceptions in patients with fibromyalgia. Patient Educ. Couns. 74, 53–60 (2009)

    Article  Google Scholar 

  • Jones J., Rutledge D.N., Jones K.D. et al.: Self-assessed physical function levels of women with fibromyalgia: a national survey. Womens Health Issues 18(5), 406–412 (2008)

    Article  Google Scholar 

  • Kobsa A., Koenemann J., Pohl W.: Personalized hypermedia presentation techniques for improving online customer relationships. Knowl. Eng. Rev. 16(2), 111–155 (2001)

    Article  MATH  Google Scholar 

  • Kreuter M., Farrell D., Olevitch L., Brennan L.: Tailoring Health Messages. Customizing Communication with Computer Technology. Lawrence Erlbaum Associates, Mahwah (2000)

    Google Scholar 

  • Kroeze W., Werkman A., Brug J.: A systematic review of randomized trials on the effectiveness of computer-tailored education on physical activity and dietary behaviors. Ann. Behav. Med. 31(3), 205–223 (2006)

    Article  Google Scholar 

  • Lorig K.R., Bodenheimer T., Holman H. et al.: Patient self-management of chronic disease in primary care. J. Am. Med. Assoc. 288(19), 2469–2475 (2002)

    Article  Google Scholar 

  • Lorig K.R., Ritter P.L., Laurent D.D. et al.: Internet-based chronic disease self-management: a randomized trial. Med. Care 44(11), 964–971 (2006)

    Article  Google Scholar 

  • Lorig K.R., Ritter P.L., Laurent D.D. et al.: The internet-based arthritis self-management program: a one-year randomized trial for patients with arthritis or fibromyalgia. Arthritis Care Res. 59(7), 1009–1017 (2008)

    Article  Google Scholar 

  • Lustria M.L., Cortese J., Noar S.M. et al.: Computer-tailored health interventions delivered over the web: review and analysis of key components. Patient Educ. Couns. 74, 156–173 (2009)

    Article  Google Scholar 

  • Mannerkopi K.: Exercise in fibromyalgia. Curr. Opin. Rheumatol. 17(2), 190–194 (2005)

    Article  Google Scholar 

  • Mannerkopi K., Iversen M.D.: Physical exercise in firbomyalgia and related syndromes. Best Pract. Res. Clin. Rheumatol. 17(4), 629–647 (2003)

    Article  Google Scholar 

  • Reiter E., Mellish C., Levine J.: Automatic generation of technical documentation. Appl. Artif. Intell. 9(3), 259–287 (1995)

    Article  Google Scholar 

  • Reiter, E., Cawsey, A., Osman, L. Roff, Y.: Knowledge acquisition for content selection. In: Proceedings of the 6th European workshop on Natural Language Generation, pp. 117–126 (1997)

  • Reiter E., Robertson R., Osman L.M.: Lessons from a failure: generating tailored smoking cessation letters. Artif. Intell. 144(1–2), 41–58 (2003)

    Article  Google Scholar 

  • Rimer B.K., Kreuter M.W.: Advancing tailored health communication: a persuasion and message effects perspective. J. Commun. 56, S184–S201 (2006)

    Article  Google Scholar 

  • Sarzi-Puttini P., Buskila D., Carrabba M. et al.: Treatment strategy in fibromyalgia syndrome: where are we now?. Semin. Arthritis Rheum. 37(6), 353–365 (2008)

    Article  Google Scholar 

  • Schulz P.J., Rubinelli S., Hartung W.: An Internet based approach to enhance self-management of chronic low back pain in the Italian-speaking population of Switzerland: results from a pilot study. Int. J. Public Health 52(5), 286–294 (2007)

    Article  Google Scholar 

  • Science Panel on Interactive Communication and Health: In: Eng, T.R., Gustafson, D.H. (eds.) Wired for Health and Well-Being: The Emergence of Interactive Health Communication. US Department of Health and Human Services, US Government Printing Office, Washington, DC (1999)

  • Spaeth M.: Epidemiology, costs, and the economic burden of fibromyalgia. Arthritis Res. Ther. 11(3), 117–118 (2009)

    Article  Google Scholar 

  • Suggs L.S.: A 10-year retrospective of research in new technologies for health communication. J. Health Commun. 11(1), 61–74 (2006)

    Article  Google Scholar 

  • Suggs L.S., Cowdery J.E., Carroll J.B.: Tailored program evaluation: past, present, future. Eval. Program Plann. 29(4), 426–432 (2005)

    Article  Google Scholar 

  • Suman A.L., Biagi B., Biasi G. et al.: One-year efficacy of a 3-week intensive multidisciplinary non-pharmacological treatment program for fibromyalgia patients. Clin. Exp. Rheumatol. 27(1), 7–14 (2009)

    Google Scholar 

  • van den Berg M.H., Schoones J.W., Vliet Vlieland T.P.: Internet-based physical activity interventions: a systematic review of the literature. J. Med. Internet Res. 9(3), e26 (2007)

    Article  Google Scholar 

  • van Koulil S., Lankveld W., Kraaimaat F.W. et al.: Tailored cognitive-behavioral therapy for fibromyalgia: two case studies. Patient Educ. Couns. 71, 308–314 (2008)

    Article  Google Scholar 

  • van Uden-Kraan C.F., Drossaert C.H.C., Taal E. et al.: Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis or fibromyalgia. Qual. Health Res. 18(3), 405–417 (2008)

    Article  Google Scholar 

  • van Vugt H.C., Konijn E.A., Hoorn J.F., Veldhuis J.: When too heavy is just fine: creating trustworthy e-health advisors. Int. J. Hum. Comput. Stud. 67(7), 571–583 (2009)

    Article  Google Scholar 

  • Wantland D.J., Portillo C.J., Holzemer W.L. et al.: The effectiveness of web-based vs non-web-based interventions: a meta-analysis of behavioral change outcomes. J. Med. Internet Res. 6(4), e40 (2004)

    Article  Google Scholar 

  • Wherton J.P., Monk A.F.: Technological opportunities for supporting people with dementia who are living at home. Int. J. Hum. Comput. Stud. 66(8), 571–586 (2008)

    Article  Google Scholar 

  • Wilson H.D., Robinson J.P., Turk D.C.: Toward the identification of symptoms patterns in people with fibromyalgia. Arthritis Care Res. 61(4), 527–534 (2009)

    Article  Google Scholar 

  • Wolfe F., Smythe H.A., Yunus M.B. et al.: The American College of Rheumatology 1990 criteria for the classification of fibromyalgia. Report of the Multicenter Criteria Committee. Arthritis Rheum. 33(2), 160–172 (1990)

    Article  Google Scholar 

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Correspondence to Luca Camerini.

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Camerini, L., Giacobazzi, M., Boneschi, M. et al. Design and implementation of a web-based Tailored Gymnasium to enhance self-management of Fibromyalgia. User Model User-Adap Inter 21, 485–511 (2011). https://doi.org/10.1007/s11257-010-9088-y

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