Abstract
Latinxs in the USA continue to be disproportionately impacted by dementia. Despite its prevalence within the Latinx community, there is a dearth of literature that explicitly addresses the unique cultural ways in which patients and families of Latinx descent experience, describe, understand, and manage brain-related diseases such as dementia. This chapter provides a nuanced and complex understanding of the contextual and sociopolitical factors (e.g., racial biases, xenophobia, institutional barriers) that impact the care of Latinx patients and their families. The central elements that characterize the Latinx culture are described, followed by a section about within-group Latinx differences, which underscores the heterogeneity (e.g., nationality, immigration, race) that exists within this population. Systemic challenges and their impact on diagnosis and symptom management of dementia are provided. The chapter concludes with a brief discussion on how Latinx culture and context impacts the caregiving of Latinxs with dementia.
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Notes
- 1.
To include and center the broad range of gender identities present among individuals of Latin American descent, the term Latinx is used throughout the chapter.
References
Acosta-Belen, E., & Santiago, C. E. (2006). Puerto Ricans in the United States: A contemporary portrait. Boulder, CO: Lynne Rienner Publications.
Adames, H. Y., & Chavez-DueƱas, N. Y. (2017). Cultural foundations and interventions in Latino/a mental health: History, theory, and within group differences. New York, NY: Routledge.
Adames, H. Y., Chavez-DueƱas, N. Y., Fuentes, M. A., Salas, S. P., & Perez-Chavez, J. G. (2014). Integration of Latino/a cultural values into palliative health care: A culture centered model. Palliative & Supportive Care, 12(2), 149ā157. https://doi.org/10.1017/S147895151300028X
Adames, H. Y., Chavez-DueƱas, N. Y., & Organista, K. C. (2016). Skin color matters in Latino/a communities: Identifying, understanding, and addressing Mestizaje racial ideologies in clinical practice. Professional Psychology: Research and Practice, 47(1), 46ā55. http://dx.doi.org/10.1037/pro0000062
Administration on Aging. (2015). A statistical profile of Hispanic older Americans aged 65+. Retrieved from http://www.aoa.acl.gov/Aging_Statistics/minority_aging/Facts-on-Hispanic-Elderly.aspx
Aggarwal, N. T. (2013). Diverse populations, health disparities and dementia. In 2013 NIH/ACL Alzheimerās Webinar Series. Retrieved from http://www.aoa.acl.gov/AoA_Programs/HPW/Alz_Grants/docs/2013_07_24-DiversityHealthDisparitiesDementia-slides.pdf
Alzheimerās Association. (2010). Alzheimerās disease facts and figures: Includes a special report on race, ethnicity, and Alzheimerās disease. Retrieved from http://www.alz.org/documents_custom/report_alzfactsfigures2010.pdf
Alzheimerās Association. (2016a). Alzheimerās disease facts and figures. Retrieved from www.alz.org/documents_custom/2016-facts-and-figures.pdf
Alzheimerās Association. (2016b). Latinos and Alzheimerās. Retrieved from http://www.alz.org/espanol/about/latinos_and_alzheimers.asp
AƱez, L. M., Silva, M. A., Paris, M., & Bedregal, L. E. (2008). Engaging Latinos through the integration of cultural values and motivational interviewing principles. Journal of Professional Psychology: Research and Practice, 39, 155ā159.
Angel, J. L., Angel, R. J., McClellan, J. L., & Markides, K. S. (1996). Nativity, declining health, and preferences in living arrangements among elderly Mexican Americans: Implications for long term care. The Gerontologist, 36, 464ā473.
Angel, J. L., Rote, S. M., Brown, D. C., Angel, R. J., & Markides, K. S. (2014). Nativity status and sources of care assistance among elderly Mexican-origin adults. Journal of Cross-Cultural Gerontology, 29, 243ā258. https://doi.org/10.1007/s10823-014-9234-9
Angel, R. J., & Angel, J. L. (2009). Hispanic families at risk: The new economy, work, and the welfare state. New York: Springer Sciences.
Apesoa-Varano, E. C., Barker, J. C., & Hinton, L. (2012). Mexican-American families and dementia: An exploration of āworkā in response to dementia-related aggressive behavior. In Aging, health, and longevity in the Mexican-origin population (pp. 277ā291). New York, NY: Springer.
Arce, C. H., Murgia, E., & Frisbie, W. P. (1987). Phenotype and life chances among Chicanos. Hispanic Journal of Behavioral Sciences, 9, 19ā22.
ArĆ©valo-Flechas, L. C., Acton, G., Escamilla, M. I., Bonner, P. N., & Lewis, S. L. (2014). Latino Alzheimerās caregivers: What is important to them? Journal of Managerial Psychology, 29(6), 661ā684.
Atkinson, D. R., Morten, G., & Sue, D. W. (1989). Counseling American minorities: A cross-cultural perspective. Dubuque, IA: Brown.
Ayalon, L., & AreĆ”n, P. A. (2004). Knowledge of Alzheimerās disease in four ethnic groups of older adults. International Journal of Geriatric Psychiatry, 19(1), 51ā57.
Bernal, G., JimĆ©nez-Chafey, M. I., & Domenech RodrĆguez, M. M. (2009). Cultural adaptation of treatments: A resource for considering culture in evidence-based practice. Professional Psychology: Research and Practice, 40(4), 361ā368. https://doi.org/10.1037/a0016401
Berry, J. W. (1990). Psychology of acculturation. In R. W. Brislin (Ed.), Applied cross-cultural psychology (pp. 232ā253). Newbury Park, CA: Sage.
Bosma, H., Apland, L., & Kazanjian, A. (2010). Cultural conceptualizations of hospice palliative care: More similarities than differences. Journal of Palliative Medicine, 24, 510ā522.
Brown, A., & Patten, E. (2013). Hispanics of Puerto Rican origin in the United States, 2011. Retrieved from www.pewhispanic.org/2013/06/19/hispanics-of-puerto-rican-origin-in-the-united-states-2011/
Capielo Rosario, C., Adames, H. Y., Chavez-DueƱas, N. Y., & RenterĆa, R. (2019). Acculturation Profiles of Central Florida Puerto Ricans: Examining the influence of perceived ethnic-racial discrimination and neighborhood ethnic-racial composition. Journal of Cross-Cultural Psychology, 50(4), 556ā576. https://doi.org/10.1177/0022022119835979
Carter, R. T. (1991). Cultural values: A review of empirical research and implications for counseling. Journal of Counseling & Development, 70(1), 164ā173. https://doi.org/10.1002/j.1556-6676.1991.tb01579x
Center for Social Justice at Seton Hall Law School and the Health Justice Program at New York Lawyers for the Public Interest. (CSJ; NYLPI; 2012). Discharge, deportation, and dangerous journeys: A study on the practice of medical repatriation. Retrieved from https://law.shu.edu/ProgramsCenters/PublicIntGovServ/CSJ/upload/final-med-repat-report-2012.pdf
Centers for Disease Control and Prevention. (2015). Hispanicsā health in the United States. Retrieved from http://www.cdc.gov/media/releases/2015/p0505-hispanic-health.html
Chandler, C. R. (1979). Traditionalism in a modern setting: A comparison of Anglo- and Mexican-American value orientations. Human Organization, 38(7), 153ā159.
Chavez-DueƱas, N. Y., Adames, H. Y., & Organista, K. C. (2014). Skin-color prejudice and within-group racial discrimination: Historical and current impact on Latino/a populations. Hispanic Journal of Behavioral Sciences, 36(1), 3ā26. https://doi.org/10.1177/0739986313511306
Chavez-DueƱas, N. Y., Adames, H. Y., Perez-Chavez, J. G., & Salas, S. P. (2019). Healing ethno-racial trauma in Latinx immigrant communities: Cultivating hope, resistance, and action. American Psychologist, 74(1), 49ā62. http://dx.doi.org/10.1037/amp0000289
Connell, C. M., Roberts, J. S., McLaughlin, S. J., & Carpenter, B. D. (2009). Black and white adult family membersā attitudes toward a dementia diagnosis. Journal of the American Geriatrics Society, 57(9), 1562ā1568.
Coon, D. W., Rubert, M., Solano, N., Mausbach, B., Kraemer, H., Arguelles, T., ā¦ Gallagher-Thompson, D. (2004). Well-being, appraisal, and coping in Latina and Caucasian female dementia caregivers: Findings from the REACH study. Aging & Mental Health, 8(4), 330ā345.
Cooper, L. A., & Roter, D. L. (2003). Patient-provider communication: The effect of race and ethnicity on process and outcomes of healthcare. In B. D. Smedley, A. Stith, & A. R. Nelson (Eds.), Unequal treatment: Confronting racial and ethnic disparities in health care (pp. 552ā593). Washington, DC: The National Academic Press.
Cooper, L. A., Roter, D. L., Johnson, R. L., Ford, D. E., Steinwachs, D. M., & Powe, N. R. (2003). Patient-centered communication, ratings of care, and concordance of patient and physician race. Annals of Internal Medicine, 11, 907ā915.
Cornelius, W. A. (2009). Ambivalent reception: Mass public responses to the āNewā Latino immigration to the United States. In M. M. SuĆ”rez-Orozco & M. M. Paez (Eds.), Latinos remaking America (pp. 165ā189). Berkeley, CA: University of California Press.
Cox, C., & Monk, A. (1993). Hispanic culture and family care of Alzheimerās patients. Health & Social Work, 18(2), 92ā100.
Cox, C. B. (2007). Dementia and social work practice: Research and interventions. New York, NY: Springer.
Crist, J. D., Garcia-Smith, D., & Phillips, L. R. (2006). Accommodating the stranger en casa: How Mexican American elders and caregivers decide to use formal care. Research and Theory for Nursing Practice: An International Journal, 20(2), 109ā126. https://doi.org/10.1891/088971806780641791
Crist, J. D., McEwen, M. M., Herrera, A. P., Kim, S. S., Pasvogel, A., & Hepworth, J. T. (2009). Caregiving burden, acculturation, familism, and Mexican American eldersā use of home care services. Research and Theory for Nursing Practice: An International Journal, 23(3), 165ā166. https://doi.org/10.1891/1541-6577.23.3.165
CuĆ©llar, I., Arnold, B., & Maldonado, R. (1995). Acculturation rating scale for Mexican Americans-II: A revision of the original ARSMA scale. Hispanic Journal of Behavioral Sciences, 17, 275ā304.
De La Cancela, V. (1986). A critical analysis of Puerto Rican machismo: Implications for clinical practice. Psychotherapy Theory, Research, & Practice, 23(2), 291ā296. https://doi.org/10.1037/h0085611
DeNavas, C., Proctor, B. D., & Smith, J. C. (2011). Income, poverty, and health insurance coverage in the United States: 2010. Washington, DC: United States Census Bureau.
Depp, C., Sorocco, K., Kasl-Godley, J., Thompson, L., Rabinowitz, Y., & Gallagher-Thompson, D. (2005). Caregiver self-efficacy, ethnicity, and kinship differences in dementia caregivers. The American Journal of Geriatric Psychiatry, 13(9), 787ā794.
Dilworth-Anderson, P., Hendrie, H. C., Manly, J. J., Khachaturian, A. S., & Fazio, S. (2008). Diagnosis and assessment of Alzheimerās disease in diverse populations. Alzheimerās & Dementia: The Journal of the Alzheimerās Association, 4(4), 305ā309. https://doi.org/10.1016/j.jalz.2008.03.001
Donelson, K. (2015). Medical repatriation: The dangerous intersection of health care law and immigration. Journal of Health Care Law and Policy, 18(2), 347ā369.
Emergency Medical Treatment and Active Labor Act (EMTALA; 1986). Retrieved from https://www.cms.gov/Regulations-and-Guidance/Legislation/EMTALA/
Espino, D. V., Angel, J. L., Wood, R. C., Finely, M. R., & Ye, Y. (2013). Characteristics of Mexican American elders admitted to nursing facilities in the United States: Data from the Hispanic established populations for epidemiologic studies of the elderly (EPESE) study. Journal of the American Directors Association, 14(3), 226.e221ā226.e224.
Evercare and the National Alliance for Caregiving. (2008). Evercare study of Hispanic family caregiving in the U.S.: Findings from a national study. Retrieved from http://www.caregiving.org/data/Hispanic_Caregiver_Study_web_ENG_FINAL_11_04_08.pdf
Falicov, C. J. (1989). Latino families in therapy (2nd ed.). New York, NY: Guilford Press.
Ferri, C. P., Prince, M. J., Brayne, C., Brodaty, H., Fratiglioni, L., Ganguli, M., ā¦ Alzheimerās Disease International. (2005). Global prevalence of dementia: A Delphi consensus study. Lancet, 366(9503), 2112ā2117. https://doi.org/10.1016/S0140-6736(05)67889-0
Flores, E., Tschann, J. M., Dimas, J. M., Bachen, E. A., Pasch, L. A., & de Groat, C. L. (2008). Perceived discrimination, perceived stress, and mental and physical health among Mexican-origin adults. Hispanic Journal of Behavioral Sciences, 30(4), 401ā424. https://doi.org/10.1177/0739986308323056
Fortinsky, R. H. (2014). Challenges in supporting people with dementia from Latino backgrounds and their family careers. Workshop presented at Making Research Count Practice Development. Kingās College, London.
French, B. H., Lewis, J. A., Mosely, D., Adames, H. Y., Chaves-DueƱas, N. Y., Chen, G. A., & Neville, H. A. (2019). Toward a psychological framework of radical healing in Communities of Color. The Counseling Psychologist. https://doi.org/10.1177/0011000019843506
Gallagher-Thompson, D., Singer, L. S., Depp, C., Mausbach, B. T., Cardenas, V., & Coon, D. W. (2004). Effective recruitment strategies for Latino and Caucasian dementia family caregivers in intervention research. The American Journal of Geriatric Psychiatry, 12(5), 484ā490.
Gallagher-Thompson, D., Tzuang, M., Hinton, L., Alvarez, P., Rengifo, J., Valverde, I., ā¦ Thompson, L. W. (2015). Effectiveness of a fotonovela for reducing depression and stress in Latino dementia family caregivers. Alzheimer Disease and Associated Disorders, 29(2), 146.
Gassoumis, Z. D., Wilber, K. H., Baker, L. A., & Torres-Gil, F. M. (2010). Who are the Latino baby boomers? Demographic and economic characteristics of a hidden population. Journal of Aging & Social Policy, 22(1), 53ā68.
Gil, R. M., & Vasquez, C. I. (1996). The Maria paradox. New York, NY: Perigee.
Haan, M. N., Mungas, D. M., Gonzalez, H. M., Ortiz, T. A., Acharya, A., & Jagust, W. J. (2003). Prevalence of dementia in older Latinos: The influence of type 2 diabetes mellitus, stroke and genetic factors. Journal of the American Geriatrics Society, 51, 169ā177.
Helms, J. E. (1990). Black and white racial identity: Theory, research, and practice. Westport, CT: Greenwood Press.
Hernandez, A. M., & Bigatti, S. M. (2010). Depression among older Mexican American caregivers. Cultural Diversity and Ethnic Minority Psychology, 16(1), 50ā58. https://doi.org/10.1037/a0015867
Hinton, L., Chambers, D., & VelĆ”squez, A. (2009). Making sense of behavioral disturbances in persons with dementia: Latino family caregiver attributions of neuropsychiatric inventory domains. Alzheimerās Disease and Associated Disorders, 23(4), 401ā405. https://doi.org/10.1097/WAD.0b013e3181a6bc21
Hinton, L., Chambers, D., VelĆ”squez, A., Gonzalez, H., & Haan, M. (2006). Dementia neuropsychiatric symptom severity, help-seeking patterns, and unmet needs in the Sacramento Area Latino Study on Aging (SALSA). Clinical Gerontologist, 29(4), 1ā16.
Hinton, L., Franz, C. E., Yeo, G., & Levkoff, S. E. (2005). Concepts of dementia in a multiethnic sample of caregivers. Journal of the American Geriatrics Society, 53(8), 1405ā1410.
Hinton, L., Haan, M., Gellar, S., & Mungas, D. (2003). Neuropsychiatric symptoms in Latino elders with dementia or cognitive impairment without dementia and factors that modify their association with caregiver depression. The Gerontologist, 43(5), 669ā677.
Hinton, L., Tomaszewski Farias, S., & Wegelin, J. (2008). Neuropsychiatric symptoms are associated with disability in cognitively impaired Latino elderly with and without dementia: Results from the Sacramento Area Latino Study on Aging. International Journal of Geriatric Psychiatry, 23(1), 102ā108. https://doi.org/10.1002/gps.1952
Inclan, J. (1985). Variations in value orientations in mental health work with Puerto Ricans. Psychotherapy: Theory, Research, Practice, Training, 22(2S), 324ā334. https://doi.org/10.1037/h0085511
John, R., Resendiz, R., & de Vargas, L. W. (1997). Beyond familism?: Familism as explicit motive for eldercare among Mexican American caregivers. Journal of Cross-Cultural Gerontology, 12, 145ā162.
Kalibatseva, Z., & Leong, F. L. (2014). A critical review of culturally sensitive treatments for depression: Recommendations for intervention and research. Psychological Services, 11(4), 433ā450. https://doi.org/10.1037/10036047
Karlawish, J., Barg, F. K., Augsburger, D., Beaver, J., Ferguson, A., & Nunez, J. (2011). What Latino Puerto Ricans and non-Latinos say when they talk about Alzheimerās disease. Alzheimerās & Dementia: The Journal of the Alzheimerās Association, 7(2), 161ā170. https://doi.org/10.1016/j.jalz.2010.03.015
Killin, L. O., Starr, J. M., Shiue, I. J., & Russ, T. C. (2016). Environmental risk factors for dementia: A systematic review. BMC Geriatrics, 16(1), 175. https://doi.org/10.1186/s12877-016-0342-y
Kluckhohn, F. R., & Strodtbeck, F. L. (1961). Variations in value orientations. Evanston, IL: Row, Peterson.
Kohatsu, E. L., Concepcion, W. R., & Perez, P. (2010). Incorporating levels of acculturation in counseling practice. In J. G. Ponterotto, J. M. Casas, L. A. Suzuki, & C. M. Alexander (Eds.), Handbook of multicultural counseling (2nd ed., pp. 343ā456). Thousand Oaks, CA: Sage.
Krogstad, J. M., & Lopez, M. H. (2014). Hispanic immigrants more likely to lack health insurance than U.S.-born. Retrieved from http://www.pewresearch.org/fact-tank/2014/09/26/higher-share-of-hispanic-immigrants-than-u-s-born-lack-health-insurance/
Kronick, R. F., & Hargis, C. H. (1998). Dropouts: Who drops out and whyāAnd the recommended action. Springfield, IL: Charles C. Thomas Publishing.
Kunda, Z., & Sherman-Williams, B. (1993). Stereotypes and the construal of individuating information. Personality and Social Psychology Bulletin, 19, 90ā99.
Livney, M. G., Clark, C. M., Karlawish, J. H., Cartmell, S., NegrĆ³n, M., NuƱez, J., ā¦ Arnold, S. E. (2011). Ethnoracial differences in the clinical characteristics of Alzheimerās disease at initial presentation at an urban Alzheimerās disease center. The American Journal of Geriatric Psychiatry, 19(5), 430ā439. https://doi.org/10.1097/JGP.0b013e3181f7d881
Lopez, G., & Patten, E. (2015). The impact of slowing immigration: Foreign-born share falls among 14 largest U.S. Hispanic origin groups. Washington, DC: Pew Research Center. Retrieved from www.pewhispanic.org/2015/09/15/the-impact-of-slowing-immigration-foreign-born-share-falls-among-14-largest-us-hispanic-origin-groups/
Losada, A., Shurgot, G. R., Knight, B. G., MĆ”rquez, M., Montorio, I., Izal, M., & Ruiz, M. A. (2006). Cross-cultural study comparing the association of familism with burden and depressive symptoms in two samples of Hispanic dementia caregivers. Aging & Mental Health, 10(1), 69ā76.
MagaƱa, S., Schwartz, S., Rubert, M., & Szapocznik, J. (2006). Hispanic caregivers of adults with mental retardation: The importance of family functioning. American Journal on Mental Retardation, 111, 250ā262.
Manly, J. J., & Mayeux, R. (2004). Ethnic differences in dementia and Alzheimerās disease. In N. B. Anderson, R. A. Bulatao, & B. Cohen (Eds.), Critical perspectives on racial and ethnic differences in health in late life (pp. 95ā141). Washington, DC: The National Academic Press.
Mehta, K. M., Yin, M., Resendez, C., & Yaffe, K. (2005). Ethnic differences in acetylcholinesterase inhibitor use for Alzheimer disease. Neurology, 65(1), 159ā162.
Mendez-Luck, C. A., Applewhite, S. R., Lara, V. E., & Toyowaka, N. (2016). The concept of familism in the lived experiences of Mexican-origin caregivers. Journal of Marriage and Family, 78, 813ā829. https://doi.org/10.1111/jomf.12300
Migration Policy Institute. (2014). Profile of the unauthorized population: United States. Retrieved from http://www.migrationpolicy.org/data/unauthorized-immigrant-population/state/US
Miller, W. R., & Rollnick, S. (2013). Motivational interviewing: Helping people change. New York, NY: Guilford Press.
Montalvo, F. F. (2005). Surviving race: Skin color and the socialization and acculturation of Latinas. Journal of Ethnic and Cultural Diversity in Social Work, 13(3), 25ā43.
Montalvo, F. F., & Codina, G. E. (2001). Skin color and Latinos in the United States. Ethnicities, 1(3), 321ā341. https://doi.org/10.1177/146879680100100303
National Conference of State Legislatures. (2011). Immigrant policy project: 2010 Immigration-related laws and resolutions in the States. Retrieved from www.ncsl.org/research/immigration/2010-immigration-related-laws-and-resolutions-in-t.aspx
National Council of La Raza. (1990). Immigration reform. Retrieved from http://www.nclr.org/content/topics/detail/500
National Council of La Raza. (2008). Five facts about undocumented workers in the United States. Retrieved from http://publications.nclr.org/bitstream/handle/123456789/1002/FS_FiveFacts_1.pdf?sequence=1&isAllowed=y
National Hispanic Council on Aging. (2016). Status of Hispanic older adults: Insights from the field report. Retrieved from http://www.nhcoa.org/wp-content/uploads/2016/09/2016-NHCOA-Status-of-Hispanic-Older-Adults-report-.pdf
Neary, S. R., & Mahoney, D. F. (2005). Dementia caregiving: The experience of Hispanic/Latino caregivers. Journal of Transcultural Nursing, 16(2), 163ā170. https://doi.org/10.1177/1043659604273547
Organista, K. C. (2007). Solving Latino psychosocial and health problems: Theory, practice, and populations. Hoboken, NJ: Wiley.
Ory, M. G., Hoffman, R. R., Yee, J. L., Tennstedt, S., & Schulz, R. (1999). Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. The Gerontologist, 39(2), 177ā186.
Phinney, J. (1989). Stages of ethnic identity development in minority group adolescents. Journal of Early Adolescence, 9, 34ā49.
Ramos, B., Jaccard, J., & Guilamo-Ramos, V. (2003). Dual ethnicity and depressive symptoms: Implications of being black and Latino/a in the United States. Hispanic Journal of Behavioral Sciences, 25(2), 147ā173. https://doi.org/10.1177/0739986303025002002
RodrĆguez, J. J. L., Ferri, C. P., Acosta, D., Guerra, M., Huang, Y., Jacob, K. S., ā¦ Prince, M. J. (2008). Prevalence of dementia in Latin America, China, and India: A population-based cross-sectional survey. Lancet, 372, 464ā474.
RodrĆguez, J. J. L., Valhuerdi, A., Sanchez, I. I., Reyna, C., Guerra, M. A., Copeland, J. R., ā¦ Prince, M. J. (2008). The prevalence, correlates and impact of dementia in Cuba: A 10/66 group population-based survey. Neuroepidemiology, 31, 243ā251. https://doi.org/10.1159/000165362
Romero, A. J., CuĆ©llar, I., & Roberts, R. E. (2000). Ethnocultural variables and attitudes toward cultural socialization of children. Journal of Community Psychology, 28(1), 79ā89. https://doi.org/10.1002/(SICI)1520-6629(200001)28:1<79::AID-JCOP8>3.0.CO;2-N
Romero, D. (2016). In the era of trump, anti-Latino hate crimes jumped 69% in L.A. Retrieved from http://www.laweekly.com/news/in-the-era-of-trump-anti-latino-hate-crimes-jumped-69-in-la-7443401
Rozario, P. A., & DeRienzis, D. (2008). Familism beliefs and psychological distress among African American women caregivers. The Gerontologist, 48(6), 772ā780. https://doi.org/10.1093/geront/48.6.772
Saetermoe, C. L., Beneli, I., & Busch, R. M. (1999). Perceptions of adulthood among Anglo and Latino parents. Current Psychology, 18(2), 171ā184. https://doi.org/10.1007/s12144-999-1026-y
Santiago-Rivera, A. L., Adames, H. Y., Chavez-DueƱas, N. Y., & Benson-Florez, G. (2016). The impact of racism on communities of color: Historical contexts and contemporary issues. In A. N. Alvarez, C. T. H. Liang, & H. A. Neville (Eds.), The cost of racism for people of color: Contextualizng Expereinces of discrimination (pp. 229ā245). Washington, DC: APA Books. https://doi.org/10.1037/14852-011
Santiago-Rivera, A. L., Arredondo, P., & Gallardo-Cooper, M. (2002). Counseling Latinos and la familia: A practical guide. Thousand Oaks, CA: Sage Publications.
Scharlach, A. E., Kellam, R., Ong, N., Baskin, A., Goldstein, C., & Fox, P. J. (2006). Cultural attitudes and caregiver service use: Lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47(1ā2), 133ā156. https://doi.org/10.1300/J083v47n01_09
Schulz, R., OāBrien, A. T., Bookwala, J., & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. The Gerontologist, 35(6), 771ā791.
Shurgot, G. R., & Knight, B. G. (2005). Influence on neuroticism, ethnicity, familism, and social support on perceived burden in dementia caregivers: Pilot test of the transactional stress and social support model. Journal of Gerontology: Psychological Sciences, 60(6), P331āP334. https://doi.org/10.1093/geronb/60.6.P331
Smedley, B. D., Stith, A., & Nelson, A. R. (2003). Unequal treatment: Confronting racial and ethnic disparities in health care. Washington, DC: The National Academic Press.
Sontag, D. (2008). Departed from U.S. in a coma, returned to U.S. to be saved. Retrieved from http://www.nytimes.com/2008/11/09/world/americas/09iht-deport.1.17653904.html
Sousa, R. M., Ferri, C. P., Acosta, D., Guerra, M., Huang, Y., Jacob, K. S., ā¦ Prince, M. (2010). The contribution of chronic diseases to the prevalence of dependence among older people in Latin America, India, and China: A 10/66 dementia research group population-based survey. BioMed Central Geriatrics, 10(53). https://doi.org/10.1186/1471-2318-10-53
Stacey, M., Carbone-LĆ³pez, K., & Rosenfeld, R. (2011). Demographic change and ethnically motivated crime: The impact of immigration on anti-Hispanic hate crime in the United States. Journal of Contemporary Criminal Justice, 27, 278ā298.
SuƔrez-Orozco, C., & SuƔrez-Orozco, M. (2001). Children of immigration. Cambridge, MA: Harvard University Press.
Szapocznik, J., Scopetta, M. A., & King, O. E. (1978). Theory and practice in matching treatment to the special characteristics and problems of Cuban immigrants. Journal of Community Psychology, 6(2), 112ā122. https://doi.org/10.1002/1520-6629(197804)6:2<112::AID-JCOP2290060203>3.0.CO:2-R
Talamantes, M. A., Trejo, L., Jiminez, D., & Gallagher-Thompson, D. (2006). Working with Mexican American families. In G. Yeo & D. Gallagher-Thompson (Eds.), Ethnicity and the dementias (2nd ed., pp. 327ā340). New York, NY: Routledge.
Tobin, J. N., Wassertheil-Smoller, S., Wexler, J. P., Steingart, R. M., Budner, N., Lense, L., & Wachspress, J. (1987). Sex bias in considering coronary bypass surgery. Annals of Internal Medicine, 107(1), 19ā25. https://doi.org/10.7326/0003-4819-107-1-19
U.S. Census Bureau. (2004). U.S. interim projections by age, sex, race, and Hispanic origin. Retrieved from http://www.census.gov/ipc/www.usinterimproj/
U.S. Census Bureau. (2016). Profile America facts for features: Hispanic heritage month 2016. Retrieved from http://www.census.gov/content/dam/Census/newsroom/facts-for-features/2016/cb16-ff16.pdf
Valle, R., Cook-Gait, H., & Tazbaz, D. (1993). The cross-cultural Alzheimer/dementia caregiver comparison study. Paper presented at 46th scientific meeting of the Gerontological Society of America. New Orleans, LA.
Valle, R., Yamada, A. M., & Matiella, A. C. (2006). Fotonovelas: A health literacy tool for educating Latino older adults about dementia. Clinical Gerontologist, 30(1), 71ā88.
Van Ryn, M., & Burke, J. (2000). The effect of patient race and socio-economic status on physiciansā perceptions of patients. Social Science & Medicine, 50(6), 813ā828. https://doi.org/10.1016/S0277-9536(99)00338-X
VelĆ”squez, L. C. (1993). Migrant adultsā perceptions of schooling, learning, and education. Doctoral dissertation College of Education, University of Tennessee, Knoxville, TN.
Villarruel, F. A., Carlo, G., Grau, J. M., Azmitia, M., Cabrera, N. J., & Chahin, T. J. (2009). Handbook of U.S. Latino psychology: Development and community-based perspectives. Thousand Oaks, CA: Sage Publications.
Wallace, S. P., & Facio, E. L. (1987). Moving beyond familism: Potential contributions of gerontological theory to studies of Chicano/Latino aging. Journal of Aging Studies, 10(1), 337ā354.
Weiss, C. O., Gonzalez, H. M., Kabeto, M. U., & Langa, K. M. (2005). Differences in amount of informal care received by non-Hispanic whites and Latinos in a nationally representative sample of older Americans. Journal of the American Geriatrics Society, 53(1), 146ā151.
Wu, S., Vega, W. A., Resendez, J., & Jin, H. (2016). Latinos & Alzheimerās disease: New numbers behind the crisis. Retrieved from https://roybal.usc.edu/wp-content/uploads/2016/10/Latinos-and-AD_USC_UsA2-Impact-Report.pdf
Youn, G., Knight, B. G., Jeong, H. S., & Benton, D. (1999). Differences in familism values and caregiving outcomes among Korean, Korean American, and white American dementia caregivers. Psychology and Aging, 14(3), 355ā364. https://doi.org/10.1037/0882-7974.14.3.355
Zarit, S. H., Todd, P. A., & Zarit, J. M. (1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist, 26(3), 260ā266.
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Chavez-DueƱas, N.Y., Adames, H.Y., Perez-Chavez, J.G., Smith, S.N. (2020). Contextual, Cultural, and Sociopolitical Issues in Caring for Latinxs with Dementia: When the Mind Forgets and the Heart Remembers. In: Adames, H., Tazeau, Y. (eds) Caring for Latinxs with Dementia in a Globalized World. Springer, New York, NY. https://doi.org/10.1007/978-1-0716-0132-7_2
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