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Tracheostomy Care: Hospital Management and Transition to Home

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Disorders of the Neonatal Airway

Abstract

The process for a family to bring an infant with a tracheostomy home can be a long journey. A successful transition is helped by having a comprehensive program to train a primary and secondary caregiver, a multidisciplinary team to help the family with obtaining supports in the home such as private duty nursing and a durable medical equipment supplier, and a general and specialist medical team who can help the child achieve medical stability and streamline their care so it is practical in the home.

The Journey Home with a Tracheostomy: A Roadmap to Success.

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Abbreviations

AARC:

American Association of Respiratory Care

ATS:

American Thoracic Society

CPR:

Cardiopulmonary resuscitation

DME:

Durable medical equipment supplier

ENT:

Ear, nose, and throat

EtCO2 :

End-tidal CO2

HME:

Heat-moisture exchanger

ICU:

Intensive care unit

IPV:

Intrapulmonary percussive ventilation

LRTI:

Lower respiratory tract infection

RT:

Respiratory therapist

SSI:

Supplemental security income

TSV:

Tracheostomy speaking valve

VACHP:

Ventilator Assisted Children’s Home Program

VAP:

Ventilator associated pneumonia

WIC:

Women, Infants, and Children

Bibliography

  1. Sherman JM, Davis S, Albamonte-Petrick S, Chatburn RL, Fitton C, Green C, Johnston J, Lyrene RK, Myer C, Othersen HB, Wood R, Zach M, Zander J, Zinman R. American Thoracic Society—care of the child with a chronic tracheostomy. Am J Respir Crit Care Med. 2000;161(1):297–308.

    Article  CAS  PubMed  Google Scholar 

  2. Fiske E. Effective strategies to prepare infants and families in home tracheostomy care. Adv Neonatal Care. 2004;4(1):42–53.

    Article  PubMed  Google Scholar 

  3. Simonds AK. Ethical aspects of home long term ventilation in children with neuromuscular disease. Paediatr Respir Rev. 2005;6:209–14.

    Article  PubMed  Google Scholar 

  4. AARC. Clinical practice guideline. Long-term invasive mechanical ventilation in the home—2007 revision and update. Respir Care. 2007;52(1):1056–62.

    Google Scholar 

  5. Jackson Allen P, Vessey JA. Primary care of the child with a chronic condition. St. Louis: Mosby; 2004.

    Google Scholar 

  6. Noyes J, Lewis M. Care pathway for the discharge and support of children requiring long term ventilation in the community: National Service Framework for Children, Young People, and Maternity Services. UK Department of Health and Barnados, 2005.

    Google Scholar 

  7. Lewarski JS, Gay PC. Current issues in home mechanical ventilation. Chest. 2007;132(2):671–6.

    Article  PubMed  Google Scholar 

  8. Boroughs DS, Dougherty J. A multidisciplinary approach to the care of the ventilator-dependent child at home: A case study. Home Healthc Nurse. 2010;28(1):24–8.

    Article  PubMed  Google Scholar 

  9. Boroughs DS, Dougherty J. Decreasing accidental mortality of ventilator-dependent children at home—a call to action. Home Healthc Nurse. 2012;30(2):103–11.

    PubMed  Google Scholar 

  10. O’Donahue WJ, Giovanni RM, Goldberg AI, et al. Long term mechanical ventilation–guidelines for management in the home and at alternate community sites. Chest. 1986;90(1):1–37S.

    Article  Google Scholar 

  11. Carnevale FA, Alexander E, Davis M, Rennick J, Troini R. Daily Living With Distress and Enrichment: The Moral Experience of Families With Ventilator-Assisted Children at Home Pediatrics. 2006;117(1):e48–60.

    Google Scholar 

  12. Mitchell RB, Hussey HM, Setzgen G, et al. Clinical consensus statement: tracheostomy care. Otolaryngol Head Neck Surg. 2013;148(1):6–20.

    Article  PubMed  Google Scholar 

  13. American Association of Respiratory Care. AARC clinical practice guideline: long-term invasive mechanical ventilation in the home—2007 revision and update. Respir Care. 2007;52:1056–62. www.aarc.org. Accessed 8 Dec 2011.

  14. American College of Chest Physicians. Home Mechanical Ventilation Resource Center. 2011. http://www.chestnet.org/accp/article/home-mechanicalventilation-resource-center. Accessed 8 Dec 2011.

  15. American College of Chest Physicians. (Patient education guides) Mechanical ventilation: beyond the ICU. 1999. http://www.chestnet.org/accp/patientguides/mechanicalventilation-beyond-icu. Accessed 8 Dec 2011.

  16. Amin RS, Fitton CM. Tracheostomy and home ventilation in children. Semin Neonatol. 2003;8(2):127–35. From abstract accessed via EBSCOhost on 22 Apr 2011.

    Google Scholar 

  17. Boroughs D. A multidisciplinary approach to the care of the ventilator-dependent child at home: a case study. Home Healthc Nurse. 2010;28(1):24–8.

    Article  PubMed  Google Scholar 

  18. Department of Health and Human Services, Centers for Medicaid and Medicare Services. Durable Medical Equipment, Prosthetics, Orthotics, Supplies (DMEPOS) Quality Standards, Medicare Learning Network. 2011. https://www.cms.gov/MLNProducts/downloads/DMEPOS_Qual_Stand_Booklet_ICN905709.pdf. Accessed 1 Mar 2012.

  19. Franco A, Carnevale F, Alexander E, Davis M, Rennick J, Troini R. Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Pediatrics. 2006;117(1, Suppl):e48–60.

    Google Scholar 

  20. Graham R, Fleegler W, Robinson W. Chronic ventilator need in the community: a 2005 pediatric census of Massachusetts. Pediatrics. 2007;119(6):e1280–8. Originally published online 7 May 2007.

    Google Scholar 

  21. Hickey EM, Miske LJ, Debrest CL, Markov ML, Chiappa JR. An 8-week protocol decreases time for initial discharge to home of pediatric patient dependent on mechanical ventilation. J Pediatr Nurs. 2006;21(2):129–30.

    Article  Google Scholar 

  22. Kopacz MA, Moriarty-Wright R. Multidisciplinary approach for the patient on a home ventilator. Heart Lung. 1984;13(3):255–62. Abstract from EBSCOhost accessed from Medline database on 22 Apr 2011.

    Google Scholar 

  23. Lehoux P. Patients’ perspectives on high-tech home care: a qualitative inquiry into the userfriendliness of four technologies. BMC Health Serv Res. 2004;4(28):1–9.

    Google Scholar 

  24. Lewarski J, Gay P. Current issues in home mechanical ventilation. Chest. 2007;132(2):671–6.

    Article  PubMed  Google Scholar 

  25. Noyes J. Comparison of ventilator-dependent child reports of health-related quality of life with parent reports and normative populations. J Adv Nurs. 2007;58:1–10. doi:10.1111/j.1365-2648.2006.04191.x.

    Article  PubMed  Google Scholar 

  26. Ottonello G, Farrari I, Pirroddi I, Diana M, Villa G, Nahum L, Tuo R, Moscatelli A, Silvestri G. Home mechanical ventilation in children: retrospective survey of a pediatric population. Pediatr Int. 2007;49:801–5.

    Article  PubMed  Google Scholar 

  27. Reiter K, Pernath N, Pagel P, Heidi S, Hoffman F, Schoen C, Nicolai T. Risk factors for morbidity and mortality in pediatric home mechanical ventilation. Clin Pediatr 2011;50(3):237–43. Published online by SAGE Journals On-Line, 2 Dec 2010.

    Google Scholar 

  28. Tamasitis J, Shesser L. A hospital-to-home program for ventilator-dependent children sets the standard of care. AARC Times. 2012;36(10):44–52.

    Google Scholar 

  29. Tearl D, Cox T, Hartzog J. Hospital discharge of respiratory-technology-dependent children: role of a dedicated respiratory discharge coordinator. Respir Care. 2006;51(7):744–9.

    PubMed  Google Scholar 

  30. Tibballs J, Henning R, Robertson CF, Massie J, Hochmann M, Carter B, Osborne A, Stephens RA, Jones SE, White J, Bryan D. A home respiratory support programme for children by parents and layperson carers. J Paediatr Child Health. 2010;46(1–2):57–62.

    Article  PubMed  Google Scholar 

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Correspondence to Richard Lin M.D., F.A.A.P. .

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Lin, R., Stow, J., Shesser, L., Tamasitis, J. (2015). Tracheostomy Care: Hospital Management and Transition to Home. In: Lioy, J., Sobol, S. (eds) Disorders of the Neonatal Airway. Springer, New York, NY. https://doi.org/10.1007/978-1-4939-1610-8_31

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  • DOI: https://doi.org/10.1007/978-1-4939-1610-8_31

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