Skip to main content

Why Is There Such Diversity in Preferences for End-of-Life Care? Explanations and Narratives

  • Chapter
  • First Online:
Ethical Challenges in Multi-Cultural Patient Care

Part of the book series: SpringerBriefs in Ethics ((BRIEFSETHIC))

Abstract

The differences in views of advance directives, hospice care and do not resuscitate orders that characterize different ethnic and cultural groups may appear illogical to healthcare professionals of White European background.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 54.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 69.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Black, H. K., & Rubinstein, R. L. (2004). Themes of suffering in later life. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 59(1), S17–S24.

    Google Scholar 

  • Blackhall, L. J., Murphy, S. T., Frank, G., Michel, V., & Azen, S. (1995). Ethnicity and attitudes toward patient autonomy. JAMA, 274(10), 820–825.

    Google Scholar 

  • Boag, W., Suresh, H., Celi, L. A., Szolovits, P., & Ghassemi, M. (2018). Modeling mistrust in end-of-life care. arXiv:1807.00124.

  • Cai, Y. (2015). On family informed consent: On the legislation of organ donation in China. In R. Fan (Ed.), Family-oriented informed consent: East Asian and American perspectives (pp. 187–200). New York: Springer.

    Google Scholar 

  • Carrese, J. A., & Rhodes, L. A. (1995). Western bioethics on the Navajo reservation: Benefit or harm? JAMA, 826–829.

    Google Scholar 

  • Cheng, S. Y., Suh, S. Y., Morita, T., Oyama, Y., Chiu, T. Y., Koh, S. J., … Tsuneto, S. (2015). A cross-cultural study on behaviors when death is approaching in East Asian countries: What are the physician-perceived common beliefs and practices? Medicine, 94(39), 1–5.

    Article  Google Scholar 

  • Davison, S. N., & Simpson, C. (2006). Hope and advance care planning in patients with end stage renal disease: qualitative interview study. BMJ, 333(7574), 886.

    Google Scholar 

  • Ellerby, J. H., McKenzie, J., McKay, S., Gariépy, G. J., & Kaufert, J. M. (2000). Bioethics for clinicians: 18. Aboriginal cultures. Canadian Medical Association Journal, 163(7), 845–850.

    Google Scholar 

  • Ernecoff, N. C., Curlin, F. A., Buddadhumaruk, P., & White, D. B. (2015). Health care professionals’ responses to religious or spiritual statements by surrogate decision makers during goals-of-care discussions. JAMA Internal Medicine, 175(10), 1662–1669.

    Google Scholar 

  • Halperin, E. C. (2007). The poor, the black, and the marginalized as the source of cadavers in United States anatomical education. Clinical Anatomy: The Official Journal of the American Association of Clinical Anatomists and the British Association of Clinical Anatomists, 20(5), 489–495.

    Article  Google Scholar 

  • Jacobs, E. A., Rolle, I., Ferrans, C. E., Whitaker, E. E., & Warnecke, R. B. (2006). Understanding African Americans’ views of the trustworthiness of physicians. Journal of General Internal Medicine, 21(6), 642.

    Google Scholar 

  • Kagawa-Singer, M., & Blackhall, L. J. (2001). Negotiating cross-cultural issues at the end of life: You got to go where he lives. JAMA, 286(23), 2993–3001.

    Google Scholar 

  • Koffman, J., Morgan, M., Edmonds, P., Speck, P., & Higginson, I. J. (2008). “I know he controls cancer”: The meanings of religion among Black Caribbean and White British patients with advanced cancer. Social Science & Medicine, 67(5), 780–789.

    Google Scholar 

  • Kressin, N. R., & Petersen, L. A. (2001). Racial differences in the use of invasive cardiovascular procedures: review of the literature and prescription for future research. Annals of Internal Medicine, 135(5), 352–366.

    Google Scholar 

  • Lavallée, L. F. (2009). Practical application of an Indigenous research framework and two qualitative Indigenous research methods: Sharing circles and Anishnaabe symbol-based reflection. International Journal of Qualitative Methods, 8(1), 21–40.

    Article  Google Scholar 

  • Lavery, L. A., Ashry, H. R., Van Houtum, W., Pugh, J. A., Harkless, L. B., & Basu, S. (1996). Variation in the incidence and proportion of diabetes-related amputations in minorities. Diabetes Care, 19(1), 48–52.

    Google Scholar 

  • Lee, S. C. (2015). Intimacy and family consent: A Confucian ideal. Journal of Medicine and Philosophy, 40(4), 418–436.

    Article  Google Scholar 

  • Losada, A., Robinson Shurgot, G., Knight, B. G., Marquez, M., Montorio, I., Izal, M., & Ruiz, M. A. (2006). Cross-cultural study comparing the association of familism with burden and depressive symptoms in two samples of Hispanic dementia caregivers. Aging & Mental Health, 10(1), 69–76.

    Google Scholar 

  • Moazam, F. (2000). Families, patients, and physicians in medical decision making: A Pakistani perspective. Hastings Center Report, 30(6), 28–37.

    Article  Google Scholar 

  • Noonan, A. S., Velasco-Mondragon, H. E., & Wagner, F. A. (2016). Improving the health of African Americans in the USA: An overdue opportunity for social justice. Public Health Reviews, 37(1), 12.

    Google Scholar 

  • Petros, P., Abendstein, B. & Browning, A. (2018). International Urogynecology Journal, 29(11), 1563–1564

    Google Scholar 

  • Phelps, A. C., Maciejewski, P. K., Nilsson, M., Balboni, T. A., Wright, A. A., Paulk, M. E., … Prigerson, H. G. (2009). Religious coping and use of intensive life-prolonging care near death in patients with advanced cancer. JAMA, 301(11), 1140–1147.

    Article  Google Scholar 

  • Reverby, S. M. (2009). Examining Tuskegee: The infamous syphilis study and its legacy. Durham: University of North Carolina Press.

    Google Scholar 

  • Rhodes, R. L., Batchelor, K., Lee, S. C., & Halm, E. A. (2015). Barriers to end-of-life care for African Americans from the providers’ perspective: Opportunity for intervention development. American Journal of Hospice and Palliative Medicine, 32(2), 137–143.

    Google Scholar 

  • Sabogal, F., Marín, G., Otero-Sabogal, R., Marín, B. V., & Perez-Stable, E. J. (1987). Hispanic familism and acculturation: What changes and what doesn’t?. Hispanic Journal of Behavioral Sciences, 9(4), 397–412.

    Google Scholar 

  • Schneider, E. C., Zaslavsky, A. M., & Epstein, A. M. (2002). Racial disparities in the quality of care for enrollees in Medicare managed care. JAMA, 287(10), 1288–1294.

    Google Scholar 

  • Schulman, K. A., Berlin, J. A., Harless, W., Kerner, J. F., Sistrunk, S., Gersh, B. J., … Eisenberg, J. M. (1999). The effect of race and sex on physicians’ recommendations for cardiac catheterization. New England Journal of Medicine, 340(8), 618–626.

    Article  Google Scholar 

  • Searight, H. R. (2019). Health and behavior: A multidisciplinary perspective. Lanham, MD: Rowman & Littlefield.

    Google Scholar 

  • Searight, H. R., & Gafford, J. (2005). “It’s like playing with your destiny”: Bosnian immigrants’ views of advance directives and end-of-life decision-making. Journal of Immigrant Health, 7(3), 195–203.

    Google Scholar 

  • Smith, A. K., Sudore, R. L., & Pérez-Stable, E. J. (2009). Palliative care for Latino patients and their families: Whenever we prayed, she wept. JAMA, 301(10), 1047–1057.

    Google Scholar 

  • Sturman, R. L. (2003). Six lives in Jerusalem: End-of-life decisions in Jerusalem: Cultural, medical, ethical and legal considerations. New York: Springer.

    Google Scholar 

  • Wang, J. (2015). Family and autonomy: Towards shared medical decision-making in light of Confucianism. In R. Fan (Ed.), Family-oriented informed consent: East Asian and American perspectives (pp. 63–80). New York: Springer.

    Google Scholar 

  • Washington, H. A. (2006). Medical apartheid: The dark history of medical experimentation on Black Americans from colonial times to the present. New York: Doubleday Books.

    Google Scholar 

  • Zhao, W. (2015). A Confucian worldview and family-based informed consent: A case of concealing illness from the patient in China. In R. Fan (Ed.), Family-oriented informed consent: East Asian and American perspectives (pp. 231–243). New York: Springer.

    Google Scholar 

  • Zier, L. S., Burack, J. H., Micco, G., Chipman, A. K., Frank, J. A., Luce, J. M., & White, D. B. (2008). Doubt and belief in physicians’ ability to prognosticate during critical illness: the perspective of surrogate decision makers. Critical care medicine, 36(8), 2341. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2628287/pdf/nihms-85681.pdf

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to H. Russell Searight .

Rights and permissions

Reprints and permissions

Copyright information

© 2019 The Author(s), under exclusive license to Springer Nature Switzerland AG

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Searight, H.R. (2019). Why Is There Such Diversity in Preferences for End-of-Life Care? Explanations and Narratives. In: Ethical Challenges in Multi-Cultural Patient Care. SpringerBriefs in Ethics. Springer, Cham. https://doi.org/10.1007/978-3-030-23544-4_6

Download citation

Publish with us

Policies and ethics