Abstract
DNA technologies are used routinely in missing persons investigations because they allow investigators to connect a found individual, or remains that cannot be identified, to an open missing persons case. Currently, the standard genetic markers included in a DNA profile do not include any determining traits other than sex. Nevertheless, the predictive nature of genetic information, its relevance for family members, and its past use to support discrimination, at times, heightens public concerns over genetic privacy. Furthermore, as DNA technologies develop, the possibility of applying broader marker panels, genome sequencing, and next-generation technologies that may assess thousands of points in a genome grows, as does the potential inclusion of trait-predictive markers to predict race, ethnicity, height, eye-color, or other similar metrics in order to better guide investigations.
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References
Allen, A.L. (1988) Uneasy Access: Privacy for Women in a Free Society. Rowman & Littlefield, Totowa, Canada.
Anderson, K. G. (2006). How well does paternity confidence match actual paternity? Evidence from worldwide nonpaternity rates. Current Anthropology, 47(3), 513–520.
Antonopoulou, C., & Skoufalos, N. (2006). Symptoms of post-traumatic stress disorder in victims of trafficking. Annals of General Psychiatry, 5, 120.
Bennett, C. (2014). Who knows who we are? Questioning DNA analysis in disaster victim identification. New Genetics and Society, 33(3), 239–256.
Bok, S. (1983). Secrets: On the ethics of concealment and revelation. New York: Vintage Books.
Brewer, P. R., & Ley, B. L. (2010). Media use and public perceptions of DNA evidence. Science Communication, 32, 93–117.
Clawson, H. J., Small, K. M., Go, E. S., & Myles, B. W. (2003). Needs assessment for service providers and trafficking victims. In U. S. Department of Justice (Ed.), Caliber.
Curtis, C. (2014). Public understandings of the forensic use of DNA: Positivity, misunderstandings, and cultural concerns. Bulletin of Science, Technology and Society, 34(21), 21–32.
Haimes, E., & Toom, V. (2014). Hidden in full sight: Kinship, science and the law in the aftermath of the Srebrenica genocide. New Genetics and Society, 33(3), 277–294.
Hainsworth, J. (2010, March 11). Sex workers question police DNA collection. Xtra! News.
Hogan, L. A. (2008). Fourth Amendment-guilt by relation: If your brother is convicted of a crime, you too may do time. West New England Law Review, 30(543).
Jessee, E. (2012). Promoting reconciliation through exhuming and identifying victims in the 1994 Rwandan genocide. In Africa. Initiative Research (Ed.), Discussion Paper. (No. 4)
Katsanis, S. H., & Kim, J. (2014). DNA in immigration and human trafficking. In D. Primorac & M. Schanfield (Eds.), Forensic DNA applications: An interdisciplinary perspective (pp. 539–556). CRC.: Boca Raton.
Katsanis, S. H., & Wagner, J. K. (2013). Characterization of the standard and recommended CODIS markers. Journal of Forensic Sciences, 58(Suppl 1), S169–S172.
Kaufman, D. J., Murphy-Bollinger, J., Scott, J., & Hudson, K. L. (2009). Public opinion about the importance of privacy in biobank research. American Journal of Human Genetics, 85(5), 643–654.
Keating, B., Bansal, A. T., Walsh, S., Millman, J., Newman, J., Kidd, K., et al. (2013). First all-in-one diagnostic tool for DNA intelligence: Genome-wide inference of biogeographic ancestry, appearance, relatedness, and sex with the Identitas v1 Forensic Chip. International Journal of Legal Medicine, 127(3), 559–57210.1007/s00414-012-0788-1.
Kidd, K. K., Pakstis, A. J., Speed, W. C., Lagace, R., Chang, J., Wootton, S., et al. (2014). Current sequencing technology makes microhaplotypes a powerful new type of genetic marker for forensics. Forensic Science International Genetics, 12, 215–22410.1016/j.fsigen.2014.06.014.
Kim, J., & Katsanis, S. H. (2013). Brave new world of human-rights DNA collection. Trends in Genetics, 29(6), 329–33210.1016/j.tig.2013.04.002.
Kim, J., Mammo, D., Siegel, M. B., & Katsanis, S. H. (2011). Policy implications for familial searching. Investigative Genetics, 2, 22.
Margulis, S. T. (2003). Privacy as a social issue and behavioral concept. Journal of Social Issues, 59(2), 243–261.
Parker, L. S., London, A. J., & Aronson, J. D. (2013). Incidental findings in the use of DNA to identify human remains: An ethical assessment. Forensic Science International Genetics, 7(2), 221–22910.1016/j.fsigen.2012.10.002.
Parven, K. (2013). Forensic use of DNA information v human rights and privacy challenges. University of Western Sydney Law Review, 17, 41–65.
Pertossi, M. (November 20, 2009). Argentina forces dirty war orphans to provide DNA. Associated Press.
Simoncelli, T. (2006). Dangerous excursions: The case against expanding forensic DNA databases to innocent persons. The Journal of Law, Medicine and Ethics, 34(2), 390–397.
Solove, D.J. (2002) Conceptualizing privacy. California Law Review, 90:1087–1155.
Suter, S. (2009). All in the family: Privacy and DNA familial searching. Harvard Journal of Law and Technology, 23(2), 309–399.
Thomas, R. (2006). Biometrics, international migrants and human rights. European Journal of Migration and Law, 7(4), 377–41110.1163/157181605776293255.
Westin, A.F. (1967) Privacy and Freedom. Atheneum, New York.
Williams, E. D., & Kaye, D. (2014). Some ethical issues in forensic genetics. In D. Primorac & M. Schanfield (Eds.), Forensic DNA applications: An interdisciplinary perspective (pp. 527–537). Boca Raton: CRC.
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Kim, J., Katsanis, S.H. (2016). Privacy Challenges with Genetic Information. In: Morewitz, S., Sturdy Colls, C. (eds) Handbook of Missing Persons. Springer, Cham. https://doi.org/10.1007/978-3-319-40199-7_25
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