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Family Support and ICU Survivorship: Lessons Learned from the Pediatric Critical Care Experience

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Families in the Intensive Care Unit

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Abstract

The first pediatric intensive care unit (PICU) was established in 1955, marking the beginning of significant advances and progress in this subspecialty of pediatric medicine (Epstein and Brill, Pediatr Res 58:98–996, 2005). The centralization of care into PICUs with dedicated pediatric intensivists and the development of fellowship training programs was accompanied by a decreased likelihood of mortality. As more children survive with increased rates of moderate or severe disability compared to earlier rates, pediatric critical care is now moving its focus toward what happens to children after they leave the PICU environment. Similarly, adult survivors would benefit from advocacy efforts to garner services that may affect their long-term health and ability to transition out of the hospital to home. Goals for both adults and children are a return to productive lives in the community. Family-centered care practices provide sustainable methods of support that can facilitate important advances for all ICU survivors. Healthcare teams must focus on resiliency at the onset of illness, the provision of family-centered care during illness, and an ongoing responsibility to transition care and advocate for patients after ICU discharge in order to optimize outcomes for critically ill patients across the life span.

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Authors and Affiliations

  1. Section of Neonatology, The University of Chicago Medicine Comer Children’s Hospital, Chicago, IL, USA

    Bree Andrews

  2. Department of Pediatrics, The University of Chicago, Chicago, IL, USA

    Bree Andrews & Neethi Pinto

  3. Child Life Department, Johns Hopkins Children’s Center, Baltimore, MA, USA

    Nilu Rahman

  4. Section of Pediatric Critical Care, The University of Chicago Medicine Comer Children’s Hospital, Chicago, IL, USA

    Neethi Pinto

Authors
  1. Bree Andrews
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  2. Nilu Rahman
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  3. Neethi Pinto
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Correspondence to Neethi Pinto .

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Editors and Affiliations

  1. Division of Pulmonary and Critical Care Medicine, University of Maryland School of Medicine, Baltimore, MD, USA

    Giora Netzer

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Andrews, B., Rahman, N., Pinto, N. (2018). Family Support and ICU Survivorship: Lessons Learned from the Pediatric Critical Care Experience. In: Netzer, G. (eds) Families in the Intensive Care Unit. Springer, Cham. https://doi.org/10.1007/978-3-319-94337-4_9

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  • DOI: https://doi.org/10.1007/978-3-319-94337-4_9

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  • Online ISBN: 978-3-319-94337-4

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