Abstract
My daughter, Cassandra, was diagnosed with Beta-Thalassemia Major, a genetic blood disorder, at 6 months old. For the first 5 months of her life, she was a happy-go-lucky baby, always smiling and moving her arms around. Then, one day I noticed a difference. I went to a party and saw another baby her age there, laughing and so happy. I thought about how Cassandra was usually as happy, but that lately, she cried more often and just seemed lethargic.
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© 2014 Springer-Verlag Berlin Heidelberg
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Covato, A. (2014). Vignette: Taking Control of Thalassemia. In: Bali, R., Bos, L., Gibbons, M., Ibell, S. (eds) Rare Diseases in the Age of Health 2.0. Communications in Medical and Care Compunetics, vol 4. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-38643-5_7
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DOI: https://doi.org/10.1007/978-3-642-38643-5_7
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