Abstract
“Nanbyo” in Japanese is commonly used in the Japanese society to refer to so-called “intractable diseases.” In this chapter, we would like to introduce “Nanbyo” and the role of the Research Committee of the Epidemiology of “Nanbyo.” In 1972, the Japanese government began systemic countermeasures against “Nanbyo.” Since then, the government has been promoting research on “Nanbyo.” The Research Committee of the Epidemiology of “Nanbyo” was first organized in 1976. Because “Nanbyo” are diseases of low incidence and patients are scattered all over Japan, epidemiologists and clinicians work together to prevent laborious work as well as to save cost, and epidemiologists have many precious experiences by working with clinicians. Furthermore, younger epidemiologists are able to learn how to conduct epidemiological studies from senior epidemiologists of other universities and research institutes all over Japan. Although the involvement of epidemiologists was much lower in Japan than in the United Kingdom and the United States, based on the success experience of “Nanbyo,” the government promotes collaborative studies with epidemiologists and clinicians to investigate not only “Nanbyo” but also other research subjects.
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Washio, M., Inaba, Y. (2019). Introduction of Epidemiological Studies of “Nanbyo”. In: Washio, M., Kobashi, G. (eds) Epidemiological Studies of Specified Rare and Intractable Disease. Current Topics in Environmental Health and Preventive Medicine. Springer, Singapore. https://doi.org/10.1007/978-981-13-1096-6_1
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